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benign external hydrocephalus Wesley Robert's momma 1 child; Indiana 3626 posts
11th Jan '12

Was anyone else's LO diagnosed with this?
What age did it end up going away?
Did they end up needing a shunt? :(

♥Daenerys 2 kids; 2 angel babies; California 8216 posts
11th Jan '12

I just saw your post on FB about this :( I'm sorry. But hopefully he will just grow out of it and then everything will be fine! I'll keep you guys in my prayers!

Wesley Robert's momma 1 child; Indiana 3626 posts
11th Jan '12
Quoting A Team:" I just saw your post on FB about this :( I'm sorry. But hopefully he will just grow out of it and then everything will be fine! I'll keep you guys in my prayers!"

Thanks gurlie. Hopefully he does : / If more fluid builds up they'll have to do surgery to drain it. blah hopefully it just goes away.

♥Daenerys 2 kids; 2 angel babies; California 8216 posts
11th Jan '12
Quoting Wesley Robert's momma:" Thanks gurlie. Hopefully he does : / If more fluid builds up they'll have to do surgery to drain it. blah hopefully it just goes away."


Well I really really hope it'll go away on it's own. I looked it up and it seems like most of the time it does resolve itself. It'll be okay! :D

Wesley Robert's momma 1 child; Indiana 3626 posts
11th Jan '12
Quoting A Team:" Well I really really hope it'll go away on it's own. I looked it up and it seems like most of the time it does resolve itself. It'll be okay! :D"

I really hope it does. She said it's rare that they'd have to do surgery. So hopefully his noggin doesn't get any bigger.

♥Daenerys 2 kids; 2 angel babies; California 8216 posts
11th Jan '12
Quoting Wesley Robert's momma:" I really hope it does. She said it's rare that they'd have to do surgery. So hopefully his noggin doesn't get any bigger."


It's weird, his head doesn't look big to me. When I worked in a daycare we had some kids who had really large heads, so to me, his just looks normal lol. Did they know what causes it? Or is it something that just happens to some kids?

Wesley Robert's momma 1 child; Indiana 3626 posts
11th Jan '12
Quoting A Team:" It's weird, his head doesn't look big to me. When I worked in a daycare we had some kids who had really ... [snip!] ... heads, so to me, his just looks normal lol. Did they know what causes it? Or is it something that just happens to some kids?"

Ik Wes looked always looked normal to me too. His fluid is behind his forehead so it's mainly his forehead that's swelling out. She just said that our bodies are constantly making spinal fluid and normally the spinal fluid gets absorbed but in Wes's case he has an adsorbent deficiency and it causes too much fluid on the brain causing the skull to swell.