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Any Mom's out there with their kid having Aphasia? BlueJenn 1 child; Mission Viejo, Ca, United States 2523 posts
14th Apr '12

My daughters doctor thinks she has Aphasia. She is only 3 yrs old. In past few months she has taken quite a few steps back... I'm looking for support from other Mom's out there with children with this learning disability.
She had her ENT appt today. Her hearing is just fine, as well as her tongue and throat are okay.
I am just going with the flow of referals, onto a complete answer.
I hope there is a Mom out there that can have some more personal insite an input rather just reading stuff online.

reality Due December 10; 2 kids; Fall River, Massachusetts 185 posts
16th Apr '12

Im having trouble with my son he's 2 and wont eat solid foods he's still only on stage 2 baby foods ugh and when he tries a solid he urps and throws up I can't find a doctor that can help me is this similar to wat your daughter has

BlueJenn 1 child; Mission Viejo, Ca, United States 2523 posts
19th Apr '12

No, it's not even close to what she has.
Have you tried to take your son to an Ear, Nose and Throat dr?
When I took my daughter to an ENT, they looked in her mouth to see about her tonsils and under her tounge. Maybe your son has a tonsil problem? The ENT can also give you a referal to another dr as well.

myr-a-myr 3 kids; Quebec 2280 posts
19th Apr '12

:( Did they give her a scan or MRI of her brain?



I heard that aphasia is caused by brain damage. My mother has it due to a tumor in her brain.



Did this start suddenly? Or has she always showed signs of speech delay?



I'm sorry for all those questions. I know that when my son Jason was 3 they at first thought it was aphasia. He had learned 1-2 words then they were gone and he couldn't speak and understood very little speech. We realized that it was much more obvious at 3 since that age a child should know a few words and that he always had a delay it was just not as noticeable because of his age.



He has Dysphasia. I was told that the 2 at a young age can easily be mixed.

myr-a-myr 3 kids; Quebec 2280 posts
19th Apr '12
Quoting reality:" Im having trouble with my son he's 2 and wont eat solid foods he's still only on stage 2 baby foods ugh ... [snip!] ... and when he tries a solid he urps and throws up I can't find a doctor that can help me is this similar to wat your daughter has"


This sounds more like aphagia (trouble swallowing) verses aphasia (language disorder).

BlueJenn 1 child; Mission Viejo, Ca, United States 2523 posts
21st Apr '12
Quoting myr-a-myr:" :( Did they give her a scan or MRI of her brain? I heard that aphasia is caused by brain damage. My ... [snip!] ... was just not as noticeable because of his age. He has Dysphasia. I was told that the 2 at a young age can easily be mixed. "


They did not do an MRI. Dysphasia and Aphasia I have read are the same thing. So are they not the same?
She was saying words early, like perfect before 2 yr, and at 2 1/2 she was saying delicious. Then she stopped saying those words. She used to call her cousin by her name (Ashley) but now calls her Owshi.
She also talks in mainly 2-3 word sentences. She will ask "fruit snacks, please mommy". You ask her to say "can i have, fruit snacks" and she jumbles the words and gets anxious and says the frist sentence again.
She talks in 3rd person a lot. I am not sure she understands the me, you, and i. She says "I did it". But when it comes to people buying her things she says "daddy like it for you". and i tell her "no hunny. daddy got it for you" or "daddy bought it for you".
There are some times that i have to ask her several times to repeat what she says 97% of the time i would say that i know what she is talking about. But there are some words i dont understand, and i have to tell her that i dont know what she is talking about. There are some family members that she is close with also that dont know what she is saying.
She has a hard time playing with kids. She has a hard time communicating with them. Cause they ask her how old she is, and she just looks at them with a blank stare. and will change the subject to "come on girl. Slide". The same thing happens when they ask what her name is... I ask and tell her the same questions everyday, hoping that one day, she is gonna say 3. or Haley or Haley Star. She knows her name, she says her name. but i dont think she understands.
She also used to love to go potty, mommy pee pee potty. and now she screams and cries at my place, stomps her feet and says she is angry, grump, and or mad. while folding crossing her arms. =( I ask why she is so mad, and she cant tell me why.
On the other hand, she does learn new words but still only talks in short sentances.
She also have problems with her behavior. Acting out, having to repeat things not to do every single day.
Does any of this sound familiar to you? Sorry for writting so much...

myr-a-myr 3 kids; Quebec 2280 posts
21st Apr '12
Quoting BlueJenn:" They did not do an MRI. Dysphasia and Aphasia I have read are the same thing. So are they not the same? ... [snip!] ... having to repeat things not to do every single day. Does any of this sound familiar to you? Sorry for writting so much... "


I just looked it up. Some sites do say that Aphasia and Dysphasia are the same! This is really odd to me because on all the sites in french for Qu

BlueJenn 1 child; Mission Viejo, Ca, United States 2523 posts
22nd Apr '12

I really appreciate all that you wrote about you son. Sounds so much like my daughter in many ways.
Now that your son is 7, has he gotten to an average level for his age with the speech therapy?



She is super active, ADD also runs in our family history. She goes and goes all day long, she hasnt taken naps since she was about 1 1/2. She does fall all the time, trips, balance issues too.
I am worried as well about the child birth. I was put on pitocin since my water broke, I wasnt progressing, and my contractions where one on top of another, so bad that it put her into destress. I had an emergency c-section. At some point she pooped inside me (gross i know), but that was making us both sick, which is why she was destressing. She was taken from the recovery room right into the NICU. I was starting to think that maybe something along the lines of maybe the pitocin or the drugs they were giving me while i had a long waiting period to get an epi had effected her.
She does cover her ears and eyes some times as well. I never thought that it would be a sensory over load though. We live by an air plane field. So we see lots of air planes which she loves. but some are too loud for her at a park, which is even closer to the field. She hates warm water. She would rather wash her hands in cold water. She is starting to get OCD, in my eyes, cause she wants to non stop wash her hands. She will wash them 4-5 times in a row, If i am going potty.
Her dad lives seperate from us (but close by), but her aunt lives with us (but she is away on business for most of the week), so I am almost always with her.
She knows all of the alphabet letters, singing the alphabet is a bit of a struggle though.
On wed she has an appt for an evaluation with a speech therapist. The only thing is, is that she said that it is a long waiting list.
I have also contacted the school district for special needs pre school, which they said they said they might be able to get her in earlier then the therapy.
I would love for her to be in both. My fingers are crossed. Cause she has to be accepted into the preschool.
I will def start using the information that you have givin me. I am so glad that there is another mother out there that is going/has gone though this as well. Thank you so very much!!

myr-a-myr 3 kids; Quebec 2280 posts
22nd Apr '12
Quoting BlueJenn:" I really appreciate all that you wrote about you son. Sounds so much like my daughter in many ways. ... [snip!] ... me. I am so glad that there is another mother out there that is going/has gone though this as well. Thank you so very much!!"


It's my pleasure!



Today Jason is 7 and is considered moderate to mild with his expressive speech but I'm thinking mostly due to the dyspraxia versus dysphasia, He has low muscle tone in his face and neck. He still drools and has a hard time articulating his words properly. For the interpretive he is still considered moderate when it is 1-2 3 word sentences, severe when it's more then that. It really does take a lot of concentration from him and his auditory memory incapability does not help at all. He is in first grade now. Not going too well and will have to take it again. I'm currently fighting to have him go to a specialized class for kids suffering from dysphasia. There are no more then 8 students with a teacher and speech therapist in charge for the class. It's very one on one and calm. His ADD kicks in full blast with a class of 30 who squirm or tick or make sounds around him.



A big thing with Dysphasia is a problem with generalizing knowledge. Like you tell him the Apple is red. Then you will say The truck is red. He will get confused because you already said the apple was red. Can't be there and on the truck at the same time. Or math...yeah...math lol. If you show him how to add 1+2=3. After you show him another one but because the numbers would be different it's like learning from scratch again. Everything is memorized not generalized.



He is a very very calm child though. Has always been. As a baby he barely fussed. As a toddler he could sit in his toys and be content. I would check on him because he was so quiet. The Odd things from him before 3 is 1- he had night terrors at night 2-3 times a night from the time he was 4 weeks old until 4 yrs old. A screaming fit for 20 minutes. A screetch of pure terror and trying to soothe him it was as if he didn't even know you were there. Still sleeping and couldn't wake up. 2- Very hard time latching and breast feeding. After a few minutes he would clearly be exhausted and his jaw would shake from trying. I started to bottle feed his after 3 weeks. 3- at 2 he would sit with his toys but not play with them. As if he didn't understand how they worked. He would chew on them like a baby but not play.



As a younger child he did seem to have behavior that resembled OCD or autism very much. Rituals, do the same thing over and over. The psychologist explained that those few things is what he was able to do on his own. Felt a need to do them to have a sense of control over his day. Most young kids with Dysphasia will have that kind of behavior. From what I've been told.



When you mean tripping? As in loosing balance? Or tripping on her feet? Like not lifting them properly, feet turned inwards, walking on her tippy toes all the time? Jason had and still has that.



What really gives me hope and I'm telling you so you can have some too. My husband's cousin has Dysphasia and dyspraxia also. He went to elementary and childhood and it was hell learning. His parents pushed for him to work at it. He is now 18 and it does not show one bit. His mom said that towards the late teens and adulthood their brains learns how to function with the disability. He learned his tricks like colored markers, pictures etc. He knows how to calm himself and speaks very clearly and with a very good vocabulary today. He learned how to work with it instead of against it. He is 18 and still in grade 9 but is doing well and is doing summer school to catch up faster. He's already picked out college and university. He's going to be a speech therapist! I thought that is going to be one amazing ST! He will be able to relate. :)

BlueJenn 1 child; Mission Viejo, Ca, United States 2523 posts
23rd Apr '12

Tripping like walking up or down the stairs and tripping, She also trips just from walking and running.



Wow, that is really uplifting. Good for him for wanting to be a speech therapist!!

myr-a-myr 3 kids; Quebec 2280 posts
23rd Apr '12
Quoting BlueJenn:" Tripping like walking up or down the stairs and tripping, She also trips just from walking and running. Wow, that is really uplifting. Good for him for wanting to be a speech therapist!!"


Can she climb up the stairs on foot after the other. Like one for each step? Or does she climb one then the other foot meets the first on the step?



That was a big sign for Jason. That and not being able to use a tricycle at 4. It s like he couldn t find the coordination to make the pedals work to move forward.

BlueJenn 1 child; Mission Viejo, Ca, United States 2523 posts
26th Apr '12

She mostly tries to climb up the stairs one for each step, but usually ends up putting an arm out to catch herself. Shes usually in a rush to get up the stairs cause her dad lives on the second floor. If i didnt hold her hand she prob would crab crawl up the stairs. Sometimes she also just wants to play on the stairs or shes mad cause she cant go play on the slide, so she will just let her legs go out.



She has a tricycle, but she likes to push around on her feet mostly. She some what has used the pettals to go forward and backward, but she only moves a few inches back and forth, that i have seen. Of couse we mostly have grass out back. Not sure if her Aunt has seen her use the pettals more than that.



She did have a speech therapist evaluation appt today. She is giving her a referral to see an OT (Occupational therapist) and a speech therapist.
Waiting for the offical report back from the evaluation, and where they say where she is at. She said Haley did have some delays but focusing on haley and her was a bit overwellming, when both were talking to me. So it will take a few days to get in the mail.

myr-a-myr 3 kids; Quebec 2280 posts
26th Apr '12
Quoting BlueJenn:" She mostly tries to climb up the stairs one for each step, but usually ends up putting an arm out to ... [snip!] ... focusing on haley and her was a bit overwellming, when both were talking to me. So it will take a few days to get in the mail."


That's awesome! Keep that report preciously. Not sure if it's the same in the states but where I'm from I need those to get my kids approved for Specialized education. Things are moving forward! :)

BlueJenn 1 child; Mission Viejo, Ca, United States 2523 posts
28th Apr '12
Quoting myr-a-myr:" That's awesome! Keep that report preciously. Not sure if it's the same in the states but where I'm from I need those to get my kids approved for Specialized education. Things are moving forward! :)"


Oh that's a good point, I didnt think about that. I was just thinking for my records, and for the preshool thing.
Thank you so much!! I am so glad you are on here and you saw my post!! You have def have helped me out so much!! Thank you!! :D
I will def keep you posted.

myr-a-myr 3 kids; Quebec 2280 posts
28th Apr '12
Quoting BlueJenn:" Oh that's a good point, I didnt think about that. I was just thinking for my records, and for the preshool ... [snip!] ... glad you are on here and you saw my post!! You have def have helped me out so much!! Thank you!! :D I will def keep you posted."


Awesome! And it's my pleasure. I know I was glad to find a mom (my hubby's aunt) who went through it before me lol.