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VSD open heart surgery Thread Killa 3 kids; Ocala, Florida 9751 posts
1st Jul '12

Anyone elses baby have this or had this? Just have some questions.

I Stab People 3 kids; Zambia 6604 posts
1st Jul '12

my baby has a different defect, but has had OHS twice now. hes 7 months old now and thriving. is there anything specifically i can answer for you?

Thread Killa 3 kids; Ocala, Florida 9751 posts
1st Jul '12

<blockquote><b>Quoting Ailey+Lennon+Renner's Mom:</b>" my baby has a different defect, but has had OHS twice now. hes 7 months old now and thriving. is there anything specifically i can answer for you?"</blockquote>




How old when they did the surgery? I am just wondering if she will still need to be on meds after the surgery. They aren't gonna do it til she's around 4 to 6 months old. So she will need meds and oxygen, but I am wondering if she will still need it after.

I Stab People 3 kids; Zambia 6604 posts
1st Jul '12
Quoting Thread Killa:" <blockquote><b>Quoting Ailey+Lennon+Renner's Mom:</b>" my baby has a different defect, ... [snip!] ... do it til she's around 4 to 6 months old. So she will need meds and oxygen, but I am wondering if she will still need it after."



is she in CHF?



my sons first surgery was at 10 days old. he was intubated and all that jazz until that point. he came home 8 days after only on lasix, which they weaned him off of, and then started back up about a month before his second sugery at 3.5 months. he was never on any oral heart med besides lasix.



she will probably be on meds coming home from surgery but they will wean her when her heart is ready. it takes awhile for their heart to get better after being "fixed"



she will not be on them for life tho :)

Thread Killa 3 kids; Ocala, Florida 9751 posts
1st Jul '12

<blockquote><b>Quoting Ailey+Lennon+Renner's Mom:</b>" is she in CHF? my sons first surgery was at 10 days old. he was intubated and all that jazz until ... [snip!] ... her heart is ready. it takes awhile for their heart to get better after being "fixed" she will not be on them for life tho :)"</blockquote>




She's still in utero but she will be going to Shands at the University of Florida. It's in Gainesville. But no CHF. They really can't tell since she's still in the womb.



It's reassuring to hear she won't be on meds the rest of her life. That's what I was afraid of.

I Stab People 3 kids; Zambia 6604 posts
1st Jul '12
Quoting Thread Killa:" <blockquote><b>Quoting Ailey+Lennon+Renner's Mom:</b>" is she in CHF? my sons ... [snip!] ... since she's still in the womb. It's reassuring to hear she won't be on meds the rest of her life. That's what I was afraid of."


oh, didnt realize you were still pregnant :) . alot of VSD/ASD babies go into congestive heart failure before surgery, its nothing to freak out about, its not like in adults, its easily reversed once their heart is fixed in kids. but no, its very unlikely she will need meds for the rest of her life. she will need to be followed by a cardiologist for the rest of her life tho.

Thread Killa 3 kids; Ocala, Florida 9751 posts
1st Jul '12

<blockquote><b>Quoting Ailey+Lennon+Renner's Mom:</b>" oh, didnt realize you were still pregnant :) . alot of VSD/ASD babies go into congestive heart failure ... [snip!] ... she will need meds for the rest of her life. she will need to be followed by a cardiologist for the rest of her life tho."</blockquote>




It just worries me that they are waiting so long to do the surgery. It seems like something that should be fixed asap. The cardiologist said that since her blood will be mixing that it will cause her to have trouble breathing. So that really freaks me out.

I Stab People 3 kids; Zambia 6604 posts
1st Jul '12
Quoting Thread Killa:" <blockquote><b>Quoting Ailey+Lennon+Renner's Mom:</b>" oh, didnt realize you were ... [snip!] ... said that since her blood will be mixing that it will cause her to have trouble breathing. So that really freaks me out."


yeah i really dont know WHY they wait, but they often wait for VSD/ASD type surgeries. but by the time the kid actually gets surgery, theyre usually in CHF and quite sick.



my sons defect is a type of defect that needs fixed in the first few weeks of life, so he had surgery at 10 days old, but i remember the inbetween time from his heart cath to his second surgery, the waiting is horrible :/

Thread Killa 3 kids; Ocala, Florida 9751 posts
1st Jul '12

<blockquote><b>Quoting Ailey+Lennon+Renner's Mom:</b>" yeah i really dont know WHY they wait, but they often wait for VSD/ASD type surgeries. but by the time ... [snip!] ... surgery at 10 days old, but i remember the inbetween time from his heart cath to his second surgery, the waiting is horrible :/"</blockquote>




She also has a blockage in her intestines so she will need surgery for that. The cardiologist doesn't think it's that big of a deal to fix her heart first. She said she sees no problem with her having the blockage surgery before the heart. She said it's a pretty big hole too. I will take her somewhere else if she needs it.

I Stab People 3 kids; Zambia 6604 posts
1st Jul '12
Quoting Thread Killa:" <blockquote><b>Quoting Ailey+Lennon+Renner's Mom:</b>" yeah i really dont know WHY ... [snip!] ... the blockage surgery before the heart. She said it's a pretty big hole too. I will take her somewhere else if she needs it."


id look up the rating of your hospital and if its not in the top 15 or so, find another one. http://health.usnews.com/best-hospitals/pediatric-rankings/cardiology-and-heart-surgery



we went to motts, which was #3 last year. boston and CHOP are great too.

Thread Killa 3 kids; Ocala, Florida 9751 posts
1st Jul '12

<blockquote><b>Quoting Ailey+Lennon+Renner's Mom:</b>" id look up the rating of your hospital and if its not in the top 15 or so, find another one. http:/ ... [snip!] ... we went to motts, which was #3 last year. boston and CHOP are great too."</blockquote>




The one I'm going to is ranked 25th.

taking a look at life Palm beach gardens, FL, United States 49101 posts
2nd Jul '12
Quoting Thread Killa:" <blockquote><b>Quoting Ailey+Lennon+Renner's Mom:</b>" id look up the rating of your ... [snip!] ... to motts, which was #3 last year. boston and CHOP are great too."</blockquote> The one I'm going to is ranked 25th."


I use all childrens hospital my daughter has 2 holes in her heart that they hope will close by the time she is 6 months. My dad has had 2 heart attacks my moms dad had one and died and my SO mom has heart problems so it all around will suck for my daughter... Hope ur little one will be okay, My obgyn was high risk but could not get views they needed on the eco so they sent me there to have them do them and im glad they did.

Ashlee Ellis 2 kids; Florida 833 posts
2nd Jul '12

Have you looked in to Arnold Palmer hospital

Thread Killa 3 kids; Ocala, Florida 9751 posts
2nd Jul '12

<blockquote><b>Quoting Ashlee Marie Bee:</b>" Have you looked in to Arnold Palmer hospital"</blockquote>




No I looked on the list for the highest rank hospitals for cardiology and Shands was the highest. I keep getting told I'm in good hands.

I Stab People 3 kids; Zambia 6604 posts
2nd Jul '12
Quoting Thread Killa:" <blockquote><b>Quoting Ashlee Marie Bee:</b>" Have you looked in to Arnold Palmer hospital"</blockquote> ... [snip!] ... on the list for the highest rank hospitals for cardiology and Shands was the highest. I keep getting told I'm in good hands."


not true, top 5 is boston, chop, texas , motts and cincci. i gave you the list.