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Anencephaly, our bittersweet journey. Keelyyy! Due January 19 (boy); 16 kids; Ashland, Kentucky 83 posts
13th Aug '12

On February 19, 2011, just one day after my 19th birthday, Dustin and I sat in the doctor

wombie 4 kids; Zimbabwe 73281 posts
13th Aug '12

oh honey, this made me cry :cry: I'm so sorry for your loss and I pray for healing for you and your family.

user banned 3 kids; Florence, South Carolina 39499 posts
13th Aug '12

I am so sorry. My heart just breaks for you. I cried reading your story. I am so glad you got to hold her, even if only for a little while.

r a b b i t ™ Somewhere, US, United States 27547 posts
13th Aug '12

Oh my...
I don't even know what to say. Your story made my heart break and made me cry. I am so sorry for your loss, I am so sorry for your pain. But I also want to thank you for sharing your story with us. You may not feel like it, but you are a very courageous and strong woman to have survived such a heart wrenching ordeal.

Keelyyy! Due January 19 (boy); 16 kids; Ashland, Kentucky 83 posts
13th Aug '12

Thank you both. I'm just glad I can share my story with people. I'm doing a lot better since I wrote this, which was shortly after she was born. I copy and pasted it from my facebook notes. Next month will be a year since she was born and I'm dreading it. I can't bring myself to think about it as celebrating her birthday ir's more like just being reminded how long it's been since I held her. I'm having a difficult time because I'm also 17 weeks pregnant with my rainbow and i'm just a mess of emotion.

wombie 4 kids; Zimbabwe 73281 posts
13th Aug '12
Quoting Keelyyy!:" Thank you both. I'm just glad I can share my story with people. I'm doing a lot better since I wrote ... [snip!] ... I held her. I'm having a difficult time because I'm also 17 weeks pregnant with my rainbow and i'm just a mess of emotion."


*hugs*



I can't even imagine how you're feeling.

Keelyyy! Due January 19 (boy); 16 kids; Ashland, Kentucky 83 posts
13th Aug '12
Quoting wombie:" *hugs* I can't even imagine how you're feeling."


I'm glad you don't, I wish no one ever had to experience anything like baby loss. <3

Jaielyn Belong Due December 17 (boy); Harrington, Delaware 215 posts
13th Aug '12

My Uncles daughter was born with the same condition. Savannah Anne-Marie Perry was born February 2nd 2006 and she passed away right after they delivered her. She looked at my uncle took a breath and was gone=( She was only 2 pounds, but she was a breath of fresh air! Her black hair was just beautiful! You could feel the love and sorrow in the room. She would have started school last year. We think about her all the time and even though she's not here on earth with us, we still include her in everything we do! when we dye eggs for Easter, we put her name on 1 too. We do the same for Christmas stockings.We put decorations on her grave sight as well. It was hard to put the school bus out there, but we did. Thanks for sharing your story. I'm sorry for your loss and hope you are finding peace.

Keelyyy! Due January 19 (boy); 16 kids; Ashland, Kentucky 83 posts
13th Aug '12
Quoting Jaielyn Belong:" My Uncles daughter was born with the same condition. Savannah Anne-Marie Perry was born February 2nd ... [snip!] ... the school bus out there, but we did. Thanks for sharing your story. I'm sorry for your loss and hope you are finding peace."

I am SO sorry to hear of your loss. I am glad she is involved in every way possible. I try to involve my daughter to and especially when my little boy is born she will be even more involved, I want him to know he has a big sister. (:

wombie 4 kids; Zimbabwe 73281 posts
13th Aug '12
Quoting Keelyyy!:" I'm glad you don't, I wish no one ever had to experience anything like baby loss. <3"


me too

r a b b i t ™ Somewhere, US, United States 27547 posts
13th Aug '12
Quoting Keelyyy!:" Thank you both. I'm just glad I can share my story with people. I'm doing a lot better since I wrote ... [snip!] ... I held her. I'm having a difficult time because I'm also 17 weeks pregnant with my rainbow and i'm just a mess of emotion."


I can imagine the extent to which you hurt.
I don't talk about it much, but I lost a son 8 years ago this September. September is always a tough month for me as well.

Jaielyn Belong Due December 17 (boy); Harrington, Delaware 215 posts
13th Aug '12

Savannah's mom and dad are not together anymore, but her mom has 2 kids aboy and a girl and her dad just got married in March and they had their baby boy May 10th. I'm not really sure if her mom includes her brother and sister, but I know her dad will tell Joey about her because Joey is almost 3 months and he tells him all about her now! If crazy how over protected he is of Joey. He always makes sure the blankets are below his waist and nothing is up by his face. He puts his hand in front of his face to feel him breath. I know why he does it, but to someone who doesn't, he just appears to be an over protective dad!

Sarah Latham-Heath 17 kids; Stoke-on-Trent, United Kingdom 162 posts
13th Aug '12

im so sorry for your loss hunni, i lost my daughter last june at 40 weeks, i dont know why but she is an angel and it feels good to me to include her in everything i do, her little sister who is now 5months has a t-shirt which says "im the little sister" im so sorry for what you have been through, i know mine was nothing like yours but just wanted to let you know i find comfort in including her and talking about her all the time xx

NoLongerHere NowhereVille, AB, Canada 1934 posts
13th Aug '12

My heart aches for you. I'm so sorry...

Keelyyy! Due January 19 (boy); 16 kids; Ashland, Kentucky 83 posts
13th Aug '12
Quoting Rabbit