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anyone know anything about hydrocephalus? bye GIRL bye! 2 kids; Amsterdam, Netherlands 1989 posts
15th Aug '12

cousins baby has it? she is 2 months old. what causes it? and is there any treatments that can cure it for good? is this something she will have to live with forever? just looking for any advice.

Zoe&Harper's Mom (Em) 2 kids; Alabama 16920 posts
15th Aug '12

not sure what causes it but I use to keep a girl that had it and she had a shunt put in that would strain the fluid off her brain and she did have to have the shunt replaced at least once as a child but she is a healthy 20 year old now. She will have to have it checked for the rest of her life.

SailorJerry 2 kids; California 17292 posts
15th Aug '12

They thought my son had it. I went in for an ultrasound and they said one of the ventricles on his brain was enlarged. They followed up on it some weeks later and thank god he didnt have it but I did my fair share of research. Basically its fluid on the brain. They can put a stent in there when they are born to drain it but they have to do it constantly because it can reject or fill up again. It basically happens ftheir entire life a lot of the kids who suffer from it have a distorted appearance like their heads are bigger. Its really sad and im thankful my son didnt have it.

Mommy.x3 ❤ +1 Due March 17; 2 kids; 1 angel baby; Windsor, Ontario 12844 posts
status 15th Aug '12

http://members.baby-gaga.com/member628796



Message this moma! She knows lots about it. Her son has been ( and still is) dealing with it.

kikki_liz 1 child; Sharon, Wisconsin 304 posts
15th Aug '12

..i dont know much about it but i know its basically water in the brain..which basically means mental disability..i dont know what causes it..but there is no cure..the baby will probably have to go to a neurosurgeon every so often11px-Loudspeaker.svg.png

myr-a-myr 3 kids; Quebec 2280 posts
15th Aug '12

A coworker's daughter has it. She had a shunt put in and she has had 17 surgeries so far to change it. Her case is severe though and is very dependent of her shunt. If it breaks she has around 3 hours to change it before going into a coma. So it's a no no for sports or anything causing pressure to the head like scuba diving etc.



It also caused half of her body to not grow the same as the other. Like she only has half an ear, arm and leg a little shorter then the other side. One foot is a size smaller then the other.



I wouldn't have known unless her mother would have told me though. She is a summer student where I work and is starting university this September! She is a very smart and independent lady.

I Stab People 3 kids; Zambia 6604 posts
18th Aug '12
Quoting kikki_liz:" ..i dont know much about it but i know its basically water in the brain..which basically means mental ... [snip!] ... dont know what causes it..but there is no cure..the baby will probably have to go to a neurosurgeon every so often "


please do not pretend like you know what your talking about. thats totally innacurrate

Mommy.x3 ❤ +1 Due March 17; 2 kids; 1 angel baby; Windsor, Ontario 12844 posts
status 19th Aug '12
Quoting Ailey+Lennon+Renner's Mom:" please do not pretend like you know what your talking about. thats totally innacurrate"

:!:

myr-a-myr 3 kids; Quebec 2280 posts
19th Aug '12
Quoting kikki_liz:" ..i dont know much about it but i know its basically water in the brain..which basically means mental ... [snip!] ... dont know what causes it..but there is no cure..the baby will probably have to go to a neurosurgeon every so often "


Well from what I saw with my coworkers daughter, she does have water in the brain...but there is no mental or intellectual disability...at all. At 17, she graduated with honors, yes she worked hard because her constant stays and brain surgeries caused her to miss lots of school and get behind but with the aid of a tutor to catch up while in the hospital graduated with straight As!



Now she will study in French literature and then keep studying to be an elementary school teacher. Along with more classes. She said she has about 7 years of university ahead but is VERY excited and has had 3 universities fight back and forth to have her as a student...she is that smart and that good.........



OP I know her mom is part of an association to give information/support for parents and family members who go through hydrocephalus. I don't know what it's called but if you would like, I could ask her and then send you the link for information for you and your cousin. PM if you are interested :)

Grethel 1 child; Plant City, Florida 60 posts
28th Aug '12

some babies get a vp shunt to help drain the fluid , but there is no cure my daughter had a grade 4 bilateral ivh , which evolved into hydro but she is unshunted . im here if you have any specific questions

kikki_liz 1 child; Sharon, Wisconsin 304 posts
6th Sep '12


Quoting Ailey+Lennon+Renner's Mom:" please do not pretend like you know what your talking about. thats totally innacurrate"



i looked it up online..i dont know much about it at all..

Grethel 1 child; Plant City, Florida 60 posts
7th Sep '12

I'm sorry but a lot of these answers are extremely inaccurate . just because they have hydro does not mean their head will be deformed .they do go to a nuerosurgeon but it is on basis of how severe the case is . your best bet is to talk to your neurosurgeon and discuss any concerns or questions you have .

lady face 3 kids; Baltimore, Maryland 992 posts
8th Sep '12
Quoting Grethel:" I'm sorry but a lot of these answers are extremely inaccurate . just because they have hydro does not ... [snip!] ... of how severe the case is . your best bet is to talk to your neurosurgeon and discuss any concerns or questions you have ."


!!! Wow!!!