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nevermind Evelynns Mama! 1 child; Dayton, Ohio 1735 posts
17th Sep '12

neverm*********

BrandyJ#3 3 kids; Kentucky 673 posts
17th Sep '12

Did she come out of your vag?

BrandyJ#3 3 kids; Kentucky 673 posts
17th Sep '12

My little brother had it. He was unable to make it through the vag and it ended in a horrible c section because he was stuck in the birth canal. Im not sure if there are different levels but my brother was born with no soft spots what so ever. Yes it requires surgery. If you opt not to have it, she will become severly retarded and wont live long. Reason being, her brain will grow but her skull wont. Eventually the brain will run into the skull and pressure will build.
My brother had the surgery, only required a very small amount of blood and is good as new. Its a hard thing to go through but he had his surgery done at cincinnati childrens hospital by the best doctors. They did an excelent job and it was paid for by the state no worries.

Evelynns Mama! 1 child; Dayton, Ohio 1735 posts
17th Sep '12

She was vaginal. She has a soft spot, but her head is misshapen in the front right side. He ordered a xray because of it. They think if she does have it, it's a mild form.
:(

BrandyJ#3 3 kids; Kentucky 673 posts
17th Sep '12

Im not sure about that then. If they reccomend surgery i would take it. That to me just sounds like a helmet solution though. Im not sure. Just try not to freak out. I know every case and outcome wont be the same but its fixable. He had his operation when he was a little over a month old . He had no other issues from then on out. They didnt even know he had it untill they were about to send him home from his birth. I was amazed that him getting wedged in there wasnt a red flag to them. One of the nurses actually pointed it out. She went over to say goodbye to him and noticed his forhead stuck out too far. She felt around his head then informed the doc he had no soft spots. They sent him to the specialist to confirm. Btw he is 10yrs old now and has a scar like a head band from ear to ear on top. I knew a girl in high school who had it and i never knew untill i was telling her about my brother and she showed me her scar. She is a very smart girl btw.

Preston, Adam, Eli's Momm 19 kids; Colorado Springs, Colorado 4057 posts
17th Sep '12

My middle son was born with it. I had a natural gaginal hirth with him. We found out when he was 4 months old and he had corrective surgery on feb.13, 2009. He was 5days away from being 6 months old. He had Labnoid synostis, which is the rarest form of cranio and it effected his left labnoid suture.



He is an amazing, perfect, brilliant, and talented 4 year old now! He has absolutely NO problems, disabilities, and is not delayed in any way. He was at first mostly with sitting, walking, crawling, and talking. Now hes over average and just blows my mind.



Feel free to pm me anytime. Im very open about everything that went on and the things that happened before, during, and after his surgery. If you have questions feel free to ask!
Good luck!

Evelynns Mama! 1 child; Dayton, Ohio 1735 posts
17th Sep '12

They actually JUST called, and said she does not have it. Thanks for your advice guys !!

BrandyJ#3 3 kids; Kentucky 673 posts
17th Sep '12
Quoting Preston&Adam:" My middle son was born with it. I had a natural gaginal hirth with him. We found out when he was 4 months ... [snip!] ... went on and the things that happened before, during, and after his surgery. If you have questions feel free to ask! Good luck!"


Out of curiosity, where did he have his surgery?

BrandyJ#3 3 kids; Kentucky 673 posts
17th Sep '12
Quoting JudyRebecca:" They actually JUST called, and said she does not have it. Thanks for your advice guys !!"


Seriously?? Thats awesome! Congrats!

Preston, Adam, Eli's Momm 19 kids; Colorado Springs, Colorado 4057 posts
17th Sep '12

<blockquote><b>Quoting BrandyJ#3:</b>" Out of curiosity, where did he have his surgery?"</blockquote>




He had it here in Colorado Springs at the Memorial Childrens Hospital. His surgeon was Dr. Paul Grabb. Absolutely amazing man!

Amy Galm Japan 1 posts
18th Sep '12

Surgery is a necessity for a baby with Craniosynostosis. Visit www.cappskids.org to learn more