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Juliette 4 kids; 1 angel baby; Olive Branch, MS, United States 3015 posts
27th Oct '12

<blockquote><b>Quoting Santina Danielle:</b>" <blockquote><b>Quoting Juliette:</b>" <blockquote><b>Quoting Santina Danielle:</b>" ... [snip!] ... its like they only say the worst.. Which your right regaurdless of how my son will be I will always love him unconditionally.."</blockquote>



Your welcome. I actually told her neurologist I didn't want to hear it. Lol. Just to tell me what we needed to do and the test results..

Vanilla MILFshake. 1 child; Georgia 5433 posts
28th Oct '12
Quoting Santina Danielle:" <blockquote><b>Quoting Vanilla MILFshake.:</b>" My very best friend of 16 years has ... [snip!] ... but by the way it sounds her and my son have very diffrent cases they say they dont even know if my son will walk or talk.."


They did not think Alyssa would be able to walk either I don't think. I have known her since we were in kindergarten and she was actually in a wheel chair when I first met her when we were little. I believe it was sometime around 3rd grade when she actually didn't need the wheel chair anymore. But, maybe everything will turn out well for your LO! :)

mommy of Joshua 3 kids; Florida 115 posts
31st Oct '12

my son has microcephaly too, but he doesn't have cp. He doesn't have a dx yet. He has developmertal delayed and he had infantile spasms which are seizures. He doesn't have them anymore though. He is 4 years old. But I do alot of people on my facebook page that has cp too. If you want you can add me on facebook.
look me up by email or name.
isaiahgabby1@yahoo.com
message me if you have any questions

What if... 2 kids; Ontario 4587 posts
1st Nov '12

kind of going through the same with my daughter. she suffered extensive brain damage from complications at birth due to vasa previa



she's two months today, so we don't know what the affects of it are going to be yet. its so hard not knowing.



when did you start seeing them with your baby?

Santina Danielle Due March 22; USA 86 posts
3rd Nov '12

<blockquote><b>Quoting mommy of Joshua:</b>" my son has microcephaly too, but he doesn't have cp. He doesn't have a dx yet. He has developmertal delayed ... [snip!] ... you want you can add me on facebook. look me up by email or name. isaiahgabby1@yahoo.com message me if you have any questions"</blockquote>




Ok thank you I added you

Santina Danielle Due March 22; USA 86 posts
3rd Nov '12

<blockquote><b>Quoting Dallas ♥ Isla:</b>" kind of going through the same with my daughter. she suffered extensive brain damage from complications ... [snip!] ... don't know what the affects of it are going to be yet. its so hard not knowing. when did you start seeing them with your baby?"</blockquote>




Well we started seeing at his 3 month Dr appt that he had a smaller head then after that he just kinda started falling behind.. I know it is very hard some days I feel like I can't really handle out but then I look at my son and see my beautiful baby boy not his problems because regardless he its still my child problems or not, but like I said some days are harder then others.. Make sure you give your baby loss of tummy time that's kinda where I messed up

Santina Danielle Due March 22; USA 86 posts
4th Nov '12

<blockquote><b>Quoting Juliette:</b>" My daughter has CP. :) there are very few CP mamas on here."</blockquote>




I dont know if u have a fb but i juat created a page on there id like you to be apart of the name is moms of children with cerebral palsy & other disabilities look it up amd like it if ur interested.. Thanks hun

Santina Danielle Due March 22; USA 86 posts
4th Nov '12

<blockquote><b>Quoting Dallas ♥ Isla:</b>" kind of going through the same with my daughter. she suffered extensive brain damage from complications ... [snip!] ... don't know what the affects of it are going to be yet. its so hard not knowing. when did you start seeing them with your baby?"</blockquote>




Hey I just made a fb page look it up and like it its moms with children with cerebral palsy & other disabilities im just starting it up but I feel it will be very helpful for the both of us.. Hope to see u there hu.

What if... 2 kids; Ontario 4587 posts
4th Nov '12
Quoting Santina Danielle:" <blockquote><b>Quoting Dallas ♥ Isla:</b>" kind of going through the same with ... [snip!] ... & other disabilities im just starting it up but I feel it will be very helpful for the both of us.. Hope to see u there hu."


okay I will thank you so much!



Santina Danielle Due March 22; USA 86 posts
4th Nov '12

Your welcome love I'll see you there

baby iris Japan 1 posts
9th Oct '13

oh hii my daughter has microcephally it would be nice if we get to know each other i need some body to talk to about my daughter condition

Stormi Norton Due March 25 (girl); 1 child; Safford, AZ, United States 8 posts
20th Dec

My son is 2 1/2 and has cerebral palsy along with a duplication on Chromosome 9. He was born with pulmonary hypertension and ended up on ECMO for 6 days. After 5 weeks in the NICU he got to come home. He just started walking about 5 months ago but still doesn't really talk. Only babbles.

Mommyto2XYs 2 kids; south chesterfield, VA, United States 305 posts
23rd Dec

My almost 3 year old has Cerebral Palsy with left-hemiplegia the only extremity spared is his right arm everything else is hyper-reflexive and he has left side neglect. He was severely developmentally delayed and underwent many MRI's of his brain and spine during his first year of life. He has hypotonia (low muscle tone) still but has spasticity /clonus (Unusual tightness,stiffness and involuntary muscular contractions) in his lower extremities. He had torticollis (one side of his neck was tighter than the other keeping his head turned in one direction) which caused Plagiocephaly (dis formation of his skull). He had to wear a cranial remolding helmet for several months as an infant to apply pressure to different places on his skull to help reshape it. He started PT/OT at about 2-3 months old. He could not hold his head up until 8 months old, and many told me he may never sit up or be able to stand on his own. He had a few words at 10 months old mostly babble then he began having seizures at 10 months old and was diagnosed with Epilepsy at 15 months old. After his seizures began he lost speech and had a lot of developmental regression. Seizures were starting to be controlled with medication and with lots and lots and lots of Physical Therapy and Occupational Therapy he sat at 13 months and walked at 15 1/2 months. We quickly realized he needed orthotics on his ankles to walk. His ankles pronate (roll inwards) from being weak and he toe walks from the tightness in his heel cords. He is now walking, and climbing steps with assistance at almost three! He is getting speech and feeding therapy and is on muscle relaxers to help with muscle tone and spasms. There has been many bouts of developmental regression which can be discouraging but he has come such a long way. He is now in the process of getting taller/ different orthotics but he walks! Please don't feel like there is not hope, he has done things many doctors told me he would never. He has many other diagnosis along with the C.P. including: Epilepsy, Sensory Processing Disorder, Autism Spectrum Disorder, Reflux. Chronic Constipation (which muscle relaxers make it worse),feeding difficulties,is being followed by endocrinology for possible hormone deficiency and is going through genetic testing and is about to have another lumbar MRI to rule out a tethered spinal cord and has had hip dysplasia ruled out many times.etc if you need to talk! Best advice, get all the help/intervention/therapy you can! It makes the world of difference.

SamFTM South Africa 2 posts
20th Jun

Hi there. How is your son? My son is 3 weeks also diagnosed with microcephaly. We don't know the extent...we just have to wait n see.