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BekaMommyofTwoBoys 2 kids; Tulsa, Oklahoma 499 posts
23rd Nov '12

<blockquote><b>Quoting A, E & W's mommy:</b>" So they just use the ANA to stop looking for autoimmune in people for whom it's negative. And if it's ... [snip!] ... along those lines, I just don't think it's lupus, I'm glad to hear that they won't necessarily assume that it would be lupus."</blockquote>




The ana is a generic autoimmune test, as told to me by my doc. But a negative does not mean u dont have an autoimmune disease, again multiple docs told me this. A positive means u have something and more testing is definitely needed. The ana is not a conclusive test except if positive u have something. It took over 5 years for them to my ana to come back positive, i still had lupus but the ana wasnt positive till we caught me in th middle of a major flare up. I honestly dont think u have lupus, just by ur description of symptoms but there is definitely something going on.

_______Nope_________ 23772 posts
23rd Nov '12
Quoting A, E & W's mommy:" So they just use the ANA to stop looking for autoimmune in people for whom it's negative. And if it's ... [snip!] ... along those lines, I just don't think it's lupus, I'm glad to hear that they won't necessarily assume that it would be lupus."


Exactly. The odds of having an autoimmune illness with a negative ANA is pretty low. It happens, but it's rare. So a negative ANA means they look at other things generally, especially if your symptoms don't fit exactly. Positive ANA means they look more at autoimmune. This can be lupus, mixed connective tissue disorder, things like that. Thyroid as well (which I have). There are more specific tests that look for lupus, but they usually run those after a postive ANA. For me I had a positive ANA, so they reran the ANA and added a lupus test. When the ANA came back pos again but the lupus negative, they ran one for a thyroid antibodies and also for a few others. Thyroid was positive, others were negative. But again, ANA can be positive in totally heealthy people too, or it can be positive in people who will later develop autoimmune issues.



It's a really long process because the tests can be really subjective. As of right now I'm diagnosed with fibromyalgia, and I have thyroid antibodies which will eventually mess with my thyroid, though they have not yet. lol. Also, I think I probably have celiac (given the other autoimmune probloms I'm having) but that isn't diagnosed. It could still just be a gluten intolerance.

_______Nope_________ 23772 posts
23rd Nov '12
Quoting Rebekah Hankinson Trimmer:" <blockquote><b>Quoting A, E & W's mommy:</b>" So they just use the ANA to stop looking ... [snip!] ... flare up. I honestly dont think u have lupus, just by ur description of symptoms but there is definitely something going on."


No, a positive ANA does not mean you for sure have something. Look it up. Also this is what I've heard from my Dr's. Up to 15% of healthy people can have positive ANA tests with no illness. Some do go on to develop autoimmune illnesses, but many don't. So a positive ANA does NOT mean you have something. 95% of people with lupus have a positive ANA, so generally a negative is a pretty good indication you do not have it, especially if you don't have a ton of symptoms.



Don't freak her out by saying if she has a pos ANA it means you have something. That isn't true. Here is a site from a good source about it:



http://www.rheumatology.org/practice/clinical/patients/diseases_and_conditions/ana.asp