Wests Syndrome Shannyn 256 Japan 1 posts1st Dec '12
Hi All, I was hoping to find someone or people who have a child with Wests Syndrome, or know any good support groups. My nephew is 14 months old, he cant hold himself up, he is walking in his walker and he loves that. he has been diagnosed with Infantile Spasms and is on medication which is currently stopped the spasms though he does still have tiny spasms. If anyone knows any support groups or where we could find any information that would be muchly appreciated.