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Jae- DJ Jordyn & Cams Mom 3 kids; San Diego, California 5928 posts
15th Jan '13

Thank god- did anything change over night?

P Pickle Pants 98 kids; California 20522 posts
15th Jan '13

<blockquote><b>Quoting Jae=Devin & Jordyns Mommy:</b>" Thank god- did anything change over night?"</blockquote>




He said his left arm was feeling a little numb. And the part I already posted about how both sides of his face are numb and the new side swollen too.

The Doctor 2 kids; Whiskey Dick Mountain, WA, United States 59929 posts
15th Jan '13
Quoting P Pickle Pants:" <blockquote><b>Quoting Jae=Devin & Jordyns Mommy:</b>" Thank god- did anything change ... [snip!] ... feeling a little numb. And the part I already posted about how both sides of his face are numb and the new side swollen too."


Geez. I really hope he's there, now. Keep us updated. <3

P Pickle Pants 98 kids; California 20522 posts
15th Jan '13

<blockquote><b>Quoting The Doctor:</b>" Geez. I really hope he's there, now. Keep us updated. <3"</blockquote>




I will. This is so frustrating!

*Lindsey* 3 kids; Alberta 8798 posts
15th Jan '13

Yikes id be freaking. I hope they figure it out this time. that doesnt sound right. They should have ran some kind of tests the first time. Some times doctors annoy the crap out of me! Keep us posted :)

♥MOBAS♥ 2 kids; 1 angel baby; California 7198 posts
15th Jan '13

Two years ago in April I experienced paralysis on the left side of my face and no sensation............Bells Palsy. I have recovered from it but I still have some lasting effects.

♥MOBAS♥ 2 kids; 1 angel baby; California 7198 posts
15th Jan '13

I just read up on your comments, doesn't sound like he has Bells. Did they say if they still think it is a virus?

P Pickle Pants 98 kids; California 20522 posts
15th Jan '13
Quoting Sonia[MOBAS]:" Two years ago in April I experienced paralysis on the left side of my face and no sensation............Bells Palsy. I have recovered from it but I still have some lasting effects."


the paralysis is VERY mild and . Its mostly just numb. And there's swelling. And its on both sides of his face and moving down his left arm.



Its definitely not bell's palsy.



They're considering Renauld's (sp?) and FINALLY running some blood tests and giving him a calcium channel blocker to try to make the nerves fire off properly. Although it can take 4-6 weeks for the meds to do anything.

Jae- DJ Jordyn & Cams Mom 3 kids; San Diego, California 5928 posts
15th Jan '13

That's insane- do they still think its caused by the infection? How strange.

P Pickle Pants 98 kids; California 20522 posts
15th Jan '13
Quoting Jae=Devin & Jordyns Mommy:" That's insane- do they still think its caused by the infection? How strange."


No, now they're thinking the lung infection is separate. He's had symptoms of Renauld's for YEARS. He's sought treatment, but no one did much about it besides prescribe the calcium channel blockers that did NOTHING for him.

Ellie. 34 kids; Arizona 25371 posts
15th Jan '13
Quoting Spoonful of Jayson:" I was thinking bells palsy, but couldn't remember the name."


I'm sure this has been addressed, but this is my guess. I had this a few years ago

Ellie. 34 kids; Arizona 25371 posts
15th Jan '13
Quoting P Pickle Pants:" the paralysis is VERY mild and . Its mostly just numb. And there's swelling. And its on both sides of ... [snip!] ... channel blocker to try to make the nerves fire off properly. Although it can take 4-6 weeks for the meds to do anything."


Just saw your update. I really hope they find out what it is soon. How scary...

♥MOBAS♥ 2 kids; 1 angel baby; California 7198 posts
15th Jan '13
Quoting P Pickle Pants:" the paralysis is VERY mild and . Its mostly just numb. And there's swelling. And its on both sides of ... [snip!] ... channel blocker to try to make the nerves fire off properly. Although it can take 4-6 weeks for the meds to do anything."


Well I am glad they are running tests. Hope he recovers quick.

P Pickle Pants 98 kids; California 20522 posts
15th Jan '13

They think its tied to his Renaud's disease, which was diagnosed 4 years ago.



But I've never heard of facial numbness with Renaud's except when COLD and this started in the middle of the night---when it was very warm under our down comforter with his face buried.



So it makes NO sense. But we'll see.

Kismet Due May 30 (boy); 1 child; 2 angel babies; Florida 1201 posts
16th Jan '13

<blockquote><b>Quoting P Pickle Pants:</b>" They think its tied to his Renaud's disease, which was diagnosed 4 years ago. But I've never heard of ... [snip!] ... of the night---when it was very warm under our down comforter with his face buried. So it makes NO sense. But we'll see."</blockquote>



I hope things look up for you guys soon