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Is it wrong of me? user banned
23rd Jan '13

Is it wrong of me to feel this way?

I usually never get all depressed like about anything with my kiddos. But lately I have been feeling really down, It may just be because I am tired and stressed about not knowing whats up etc....

Ok so has most know my little Chloe is really small for her age, and its making me sad. I see everyone with there lo's that are her age and younger and they are pulling themselves up, walking around stuff, taking steps, crawling and talking, like actually saying words.

Chloe is basicaly 1 yrs old. Not too long away now, and does none of it. She is smart, she rolls and throws a ball, she can point out a dog a cat and sun in her picture book. She waves hi and bye, gives 5 and can play patty cake. She also gives hugs and blows and gives real kisses. If you sing the song if you are happy and you know it, she will clap her hands. She understands no, and gentle and knows where her family is and knows them by hearing their names being called etc...

Ok so I do know all kids grow differently etc...but I am 100% worried that its due to her being so small, like I am going to find out she will never walk or talk ever because of some rare dissorder or something. She has choanal atresia stenosis, and the misplaced anus. She wil be 1 on feb 4th and is 26 inches long and 15 lbs.

In size 3-6 months clothes still, size 2 diapers, genetics cleared us in Oct, but never did testing on her, they basicaly said it was just her etc...

I am terrified, with her always being so sick (since sept) and being so small not growing at all, no weight gain or height growth since 9 months old. Is it just me, or would you be terrified as well?

I keep trying to not think about it, but its hard, you know so much has been wrong since my pregnancy with her, where the said she had DS but didnt, then all these other things...ugh..

Srry its long, I guess I needed to vent a bit about it.

user banned 1 child; Germany 12377 posts
23rd Jan '13

I would be worried but I'd try not to be since she's doing well in all other areas. DD talked very early (6 months), but hit all her other milestones on time. She didn't start walking until she was 13.5 months!

user banned 3 kids; Ontario 10942 posts
23rd Jan '13
Quoting Rd.:" I would be worried but I'd try not to be since she's doing well in all other areas. DD talked very early ... [snip!] ... DD talked very early (6 months), but hit all her other milestones on time. She didn't start walking until she was 13.5 months!"


I know, she had a chance of having CHARGE syndrome..most dont know what it is, its kinda rare. But all kids who have it have choanal atrsia and misplaced genitals (or a mutation of the gential area) but they also have hearing loss and vision loss and have major mental delays.

And the never brought it up, I came across it online...ya google is not my friend. But she only has 2 out of the 6 major symptoms. Its driving me crazy. Cause I found out too that extreme intake of coffee could have cause her Stenosis as well. blah

ElleBelle (36 weeks) Due September 22; 1 child; 1 angel baby; Rio Rancho, NM, United States 22382 posts
status 23rd Jan '13

My 15 month old is in size 2 diapers..some babies are just small. She sounds like she's right on track mama

Amelia [a Mom] 1 child; 4 angel babies; Tallahassee, Florida 15289 posts
status 23rd Jan '13

I've read some of your previous posts about her. You really need to find a way to get some decent medical care for her. Sorry you and she are going through this.

Supafly★ 2 kids; Poland 14109 posts
23rd Jan '13

What does her pedi say?



It's absolutely not wrong of you to feel that way. My older son was preemie and very small and hit all his milestones like at the last possible month that is considered "normal." Up until recently he had severe speech and developmental delays. I always feel sad and nervous when I think about him going to school and what the other kids will do to him.



I would definitely be scared not knowing what's wrong.

user banned 3 kids; Ontario 10942 posts
23rd Jan '13
Quoting Elliot Grace's Mama:" My 15 month old is in size 2 diapers..some babies are just small. She sounds like she's right on track mama"


I understand some kids are just small, but with her its more then that...she has stopped growing , no growth in almost 3 months. That is not normal at all.

IMO, they should have tested for growth disorders, but they said to wait till she was 2 yrs old, and said she was fine. I honestly 100% believe my dd is suffering from some kind og disorder and either she will always be small and live her life or she will stop growing and die really young. No Dr's will listen to me and do anything about that or about her respritory problems....IDK I am loosing my mind over here.

ElleBelle (36 weeks) Due September 22; 1 child; 1 angel baby; Rio Rancho, NM, United States 22382 posts
status 23rd Jan '13

<blockquote><b>Quoting crazy coupon lady:</b>" I understand some kids are just small, but with her its more then that...she has stopped growing , ... [snip!] ... No Dr's will listen to me and do anything about that or about her respritory problems....IDK I am loosing my mind over here."</blockquote>



Oh I didn't pick up on that part! I'm sorry your going through this mama. Hopefully you get some answers soon. Just be persistent with the damn doctors and follow your motherly instinct!

user banned 3 kids; Ontario 10942 posts
23rd Jan '13
Quoting Elliot Grace's Mama:" <blockquote><b>Quoting crazy coupon lady:</b>" I understand some kids are just small, ... [snip!] ... this mama. Hopefully you get some answers soon. Just be persistent with the damn doctors and follow your motherly instinct!"


It just makes me sad, when I look at her being almost 1 yrs old and really small, I cant like do the same things with her that I did with my other kids...kwim? It makes me even more concerned that something is really wrong, which I hope there is not, but in a way I think it would ease my mind by the Dr saying yes she will always be small due to this...but she will grow up and be normal functiong person etc.....and not like not being able to walk ot talk and do things for herself, it scares me.