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user banned 4 kids; Mueang Phuket, Thailand 30487 posts
Jan 29th '13
Quoting Legendary Yermom:" <blockquote><b>Quoting ☮ Phuket:</b>" and not that anyone cares, but my daughters ... [snip!] ... on you. That's a battle no mother should face. Good luck with her results...I hope it's not as grave as you're expecting"


Thanks. i hope not either, i literally cant stop crying... and cant get ahold of SO.

user banned 2 kids; Bat Cave, North Carolina 64587 posts
Jan 29th '13

This isn't even entertaining anymore. Now it's just sad that you almost deliberately misread and mistook what I said, just so you could cry about it. :?

user banned 2 kids; Bat Cave, North Carolina 64587 posts
Jan 29th '13

<blockquote><b>Quoting Legendary Yermom:</b>" <blockquote><b>Quoting ☮ Phuket:</b>" and not that anyone cares, but my daughters ... [snip!] ... on you. That's a battle no mother should face. Good luck with her results...I hope it's not as grave as you're expecting"</blockquote>




:!:



But I also think you should stop Googling or wtf ever and convincing yourself to be fearful of a diagnosis that may not exist.

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
Jan 29th '13
Quoting Piecey.:" that seems like quite the leap...to cancer. why do you think that's what it'll be? i hope it's not."




I have noticed a bunch of symptoms the past few months and called her doctor and she got me in right away. she was concerned about the brusing and was thinking her meds were messing with her CBC.. and it was low so now we have to get more tests done and see a different doctor to try and determine it.

if you look up her CHromosome 7 deletion its linked to lukemia.. along with her brusies and bloody noses and pale face and bags thats all that comes to my mind.. stupid google.

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
Jan 29th '13
Quoting Mayhem.:" This isn't even entertaining anymore. Now it's just sad that you almost deliberately misread and mistook what I said, just so you could cry about it. :?"



im not crying over you... get over yourself..

im crying for my daughter.. fir everything she has gone through, more blood tests she has to go through and more doctors we have to see.

i dont need the f**king pity party honestly im just upset. and went back reread what you said. I did take it out of porportion and im sorry for that..

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
Jan 29th '13
Quoting Mayhem.:" <blockquote><b>Quoting Legendary Yermom:</b>" <blockquote><b>Quoting ☮ ... [snip!] ... But I also think you should stop Googling or wtf ever and convincing yourself to be fearful of a diagnosis that may not exist."


its a legit concern not only by me but her doctor as well. which was why she had a blood test done. and now her test was abnormal and we need to see a specialist.



user banned 2 kids; Bat Cave, North Carolina 64587 posts
Jan 29th '13

<blockquote><b>Quoting ☮ Phuket:</b>" im not crying over you... get over yourself.. im crying for my daughter.. fir everything she ... [snip!] ... pity party honestly im just upset. and went back reread what you said. I did take it out of porportion and im sorry for that.."</blockquote>




I typed this (what you just responded to) up and didn't hit post right away so I posted it before seeing the more recent comments. I would've have said it otherwise, it was inappropriately timed.



Anyway, I appreciate your apology. I think you're nuts and I wont deny it. But I don't follow you around and I don't deliberately say shit to offend you or anyone else, I was trying to give advice the best I could on a situation that I've never gone through. I'm sorry about your daughter, I'm sure it's incredibly hard. But you need to stop worrying yourself abot a possible diagnosis and stop comparing her to "normal"kids. She's normal by her own standards.

user banned Indiana 33802 posts
Jan 29th '13

I didnt read it all, how old is your daughter? have you heard of Dravet Syndrome? I only ask because I have a friend whos daughter has it

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
Jan 29th '13
Quoting Mayhem.:" <blockquote><b>Quoting ☮ Phuket:</b>" im not crying over you... get over yourself.. ... [snip!] ... to stop worrying yourself abot a possible diagnosis and stop comparing her to "normal"kids. She's normal by her own standards."


Thanks... i hope its just her meidicne effecting her blood count like they sayd COULD be a possibility. its just all these other symptoms that throw me off..

and we are all a little nuts.. some more than others...

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
Jan 29th '13
Quoting Patti.:" I didnt read it all, how old is your daughter? have you heard of Dravet Syndrome? I only ask because I have a friend whos daughter has it"


yes we have heard of it, and its been ruled out by genetic testing.. she is 5.

user banned 2 kids; Bat Cave, North Carolina 64587 posts
Jan 29th '13

<blockquote><b>Quoting ☮ Phuket:</b>" Thanks... i hope its just her meidicne effecting her blood count like they sayd COULD be a possibility. ... [snip!] ... a possibility. its just all these other symptoms that throw me off.. and we are all a little nuts.. some more than others..."</blockquote>



I wouldn't even think about it being cancer. Put the word out of your mind. Don't even consider it an option for now, worrying wont make things any better ya know?

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
Jan 29th '13
Quoting Mayhem.:" <blockquote><b>Quoting ☮ Phuket:</b>" Thanks... i hope its just her meidicne ... [snip!] ... cancer. Put the word out of your mind. Don't even consider it an option for now, worrying wont make things any better ya know?"


i know, all her symtoms go to that... ya know.. wouldnt you worry if your kid was full of bruises, and has bloody noses from time to time, and pale face and bags, complaingin of stomach pain and then go google it and see what it says..

then find out that her chromosome 7 gene deletion can cause lukemia too. its hard NOT to think the worse..

anyway im waiting for a call back from her nuero to see if they can test if its the medicie causing it, and then if not i will call the speicalist numebr they gave me and go from there..



user banned Indiana 33802 posts
Jan 29th '13
Quoting ☮ Phuket:" yes we have heard of it, and its been ruled out by genetic testing.. she is 5."


Gotcha. I dont know for sure if they did genetic testing on her daughter or not. I recognized the meds your daughter is on because thats what her daughter is on. Some of them anyways.



I hope they can figure something out and find out whats wrong. Ive never seen my friends daughter have a seizure and dont know what I would do if I did. Hang in there

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
Jan 29th '13

Neuorologist called and said she put in oderes for more blood tests to check liver function and to see if the meds are causing this.... Thank the lord, we can go in tonight or tomorrow and get the blood tests done. She said her meds might need tweakkng and that we should probably start weaning her off topamax...



Thats a releif, i hope it is the meds.

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
Jan 29th '13
Quoting Ailey+Lennon+Renner's Mom:" im sorry sweetie ::hugs:: maybe talk to the doctor about safely weaning her off and try accupuncture ... [snip!] ... dietary change? i know that eating clean really helps. love you <3 so sorry. its not fair at all i can totally relate."


Thanks love...