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user banned 4 kids; Mueang Phuket, Thailand 30487 posts
29th Jan '13

and not that anyone cares, but my daughters tests were abnormal and now we have to see a sepcialist and do more testing to see why her CBC is so off.. aweswome, now my kid with epilepsy and a gene deletion is gonna have cancer. i knew her symtoms were off.

I mustache you a ? Litchfield, NY, United States 67157 posts
status 29th Jan '13

<blockquote><b>Quoting LEGENDARY JAS ♥:</b>" OP, I know you're frustrated (and defensive) because you usually don't go off on people like that. I've ... [snip!] ... you with that. You don't want to stop her medication then have something go wrong, heaven forbid. It will be on your shoulders."</blockquote>




Especially with seizure meds. You really don't want to quit topomax cold turkey

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
29th Jan '13
Quoting LEGENDARY JAS ♥:" OP, I know you're frustrated (and defensive) because you usually don't go off on people like that. I've ... [snip!] ... you with that. You don't want to stop her medication then have something go wrong, heaven forbid. It will be on your shoulders."


i would never just stop cold turkey. she has been weaned on and off differnet meds for years, i know the risk of just taking her off. yes im deffensive of my duaghter who is probably dying now..

thanks everyone for your advice, im sorry im being a f**king b***h but now i just have to go cuddle her after getting off the phone with her doctor. im so over this, all i want is a healthy kid and i have a*****es calling me stupid and a fool for wanting to do whats best for my sick kid.



I mustache you a ? Litchfield, NY, United States 67157 posts
status 29th Jan '13

<blockquote><b>Quoting ☮ Phuket:</b>" and not that anyone cares, but my daughters tests were abnormal and now we have to see a sepcialist and ... [snip!] ... her CBC is so off.. aweswome, now my kid with epilepsy and a gene deletion is gonna have cancer. i knew her symtoms were off."</blockquote>



People do care. None of us would wish an ounce of harm on your child. And even though some of us think you're a little cray, we wouldn't wish the heartache of a child with cancer on you. That's a battle no mother should face.
Good luck with her results...I hope it's not as grave as you're expecting

Piecey. 3 kids; K-Town, KL, Germany 63168 posts
29th Jan '13
Quoting ☮ Phuket:" and not that anyone cares, but my daughters tests were abnormal and now we have to see a sepcialist and ... [snip!] ... her CBC is so off.. aweswome, now my kid with epilepsy and a gene deletion is gonna have cancer. i knew her symtoms were off."


that seems like quite the leap...to cancer. why do you think that's what it'll be? i hope it's not.

JΔS Georgia 72959 posts
29th Jan '13
Quoting Legendary Yermom:" <blockquote><b>Quoting LEGENDARY JAS ♥:</b>" OP, I know you're frustrated (and ... [snip!] ... be on your shoulders."</blockquote> Especially with seizure meds. You really don't want to quit topomax cold turkey"


Absolutely not. Like with other conditions, sometimes it takes time to find the right cocktail or the right treatment (if any) that works. Though I can empathize with OP, she should make sure she's making a decision with a clear head. She's obviously pretty pissed right now.

JΔS Georgia 72959 posts
29th Jan '13
Quoting Legendary Yermom:" <blockquote><b>Quoting ☮ Phuket:</b>" and not that anyone cares, but my daughters ... [snip!] ... on you. That's a battle no mother should face. Good luck with her results...I hope it's not as grave as you're expecting"


:!:

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
29th Jan '13
Quoting Legendary Yermom:" <blockquote><b>Quoting ☮ Phuket:</b>" and not that anyone cares, but my daughters ... [snip!] ... on you. That's a battle no mother should face. Good luck with her results...I hope it's not as grave as you're expecting"


Thanks. i hope not either, i literally cant stop crying... and cant get ahold of SO.

user banned 2 kids; Bat Cave, North Carolina 64587 posts
29th Jan '13

This isn't even entertaining anymore. Now it's just sad that you almost deliberately misread and mistook what I said, just so you could cry about it. :?

JΔS Georgia 72959 posts
29th Jan '13
Quoting ☮ Phuket:" i would never just stop cold turkey. she has been weaned on and off differnet meds for years, i ... [snip!] ... i want is a healthy kid and i have a*****es calling me stupid and a fool for wanting to do whats best for my sick kid. "


Well I think the fact that your emotions are high and I believe you misinterpreted Mayhem's original post. Good luck with everything though.

user banned 2 kids; Bat Cave, North Carolina 64587 posts
29th Jan '13

<blockquote><b>Quoting Legendary Yermom:</b>" <blockquote><b>Quoting ☮ Phuket:</b>" and not that anyone cares, but my daughters ... [snip!] ... on you. That's a battle no mother should face. Good luck with her results...I hope it's not as grave as you're expecting"</blockquote>




:!:



But I also think you should stop Googling or wtf ever and convincing yourself to be fearful of a diagnosis that may not exist.

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
29th Jan '13
Quoting Piecey.:" that seems like quite the leap...to cancer. why do you think that's what it'll be? i hope it's not."




I have noticed a bunch of symptoms the past few months and called her doctor and she got me in right away. she was concerned about the brusing and was thinking her meds were messing with her CBC.. and it was low so now we have to get more tests done and see a different doctor to try and determine it.

if you look up her CHromosome 7 deletion its linked to lukemia.. along with her brusies and bloody noses and pale face and bags thats all that comes to my mind.. stupid google.

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
29th Jan '13
Quoting Mayhem.:" This isn't even entertaining anymore. Now it's just sad that you almost deliberately misread and mistook what I said, just so you could cry about it. :?"



im not crying over you... get over yourself..

im crying for my daughter.. fir everything she has gone through, more blood tests she has to go through and more doctors we have to see.

i dont need the f**king pity party honestly im just upset. and went back reread what you said. I did take it out of porportion and im sorry for that..

user banned 4 kids; Mueang Phuket, Thailand 30487 posts
29th Jan '13
Quoting Mayhem.:" <blockquote><b>Quoting Legendary Yermom:</b>" <blockquote><b>Quoting ☮ ... [snip!] ... But I also think you should stop Googling or wtf ever and convincing yourself to be fearful of a diagnosis that may not exist."


its a legit concern not only by me but her doctor as well. which was why she had a blood test done. and now her test was abnormal and we need to see a specialist.



user banned 2 kids; Bat Cave, North Carolina 64587 posts
29th Jan '13

<blockquote><b>Quoting ☮ Phuket:</b>" im not crying over you... get over yourself.. im crying for my daughter.. fir everything she ... [snip!] ... pity party honestly im just upset. and went back reread what you said. I did take it out of porportion and im sorry for that.."</blockquote>




I typed this (what you just responded to) up and didn't hit post right away so I posted it before seeing the more recent comments. I would've have said it otherwise, it was inappropriately timed.



Anyway, I appreciate your apology. I think you're nuts and I wont deny it. But I don't follow you around and I don't deliberately say shit to offend you or anyone else, I was trying to give advice the best I could on a situation that I've never gone through. I'm sorry about your daughter, I'm sure it's incredibly hard. But you need to stop worrying yourself abot a possible diagnosis and stop comparing her to "normal"kids. She's normal by her own standards.