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it's heart month wyatt.earp. 2 kids; Tacoma, Washington 2166 posts
31st Jan '13

and in honor of heart month and congenital heart defect awareness week, i took some pix of my little man born with a congenital heart defect called TAPVR. he had open heart surgery when he was a day old.
DSC_0021-2_zps100f0ec8.jpgDSC_0028-4_zps044ac435.jpgDSC_0030-3_zpsdffeabab.jpgDSC_0037-3_zps7f2ad5e5.jpg

Mummy-2-2-Monsters TTC since Aug 2014; 2 kids; Seven Hills, Australia 9806 posts
status 31st Jan '13

My son had open heart surgery on the 15th feb two years ago. He spent his first birthday in the hospital recovery ward.



I make him a heart shaped cake every year.



He was born with DORV with PS, large VSD and tetralogy of fallot.



He's had a big repair, has an artificial valve. Will need surgery again when he's 10/13 yo which ever doc says. And a transplant in his 40s.



Your little fighter is so beautiful :)

The Tsukuno family 1 child; Beachwood, Ohio 596 posts
31st Jan '13

<blockquote><b>Quoting Mummy-2-2-Monsters:</b>" My son had open heart surgery on the 15th feb two years ago. He spent his first birthday in the hospital ... [snip!] ... surgery again when he's 10/13 yo which ever doc says. And a transplant in his 40s. Your little fighter is so beautiful :)"</blockquote>




I have question about his transplant when his 40 does that mean his already on the heart transplant list or when his older? Just wondering

Mummy-2-2-Monsters TTC since Aug 2014; 2 kids; Seven Hills, Australia 9806 posts
status 31st Jan '13

<blockquote><b>Quoting The Tsukuno family:</b>" <blockquote><b>Quoting Mummy-2-2-Monsters:</b>" My son had open heart surgery on the ... [snip!] ... about his transplant when his 40 does that mean his already on the heart transplant list or when his older? Just wondering"</blockquote>




No. He will have to be placed on it when he needs it.

The Tsukuno family 1 child; Beachwood, Ohio 596 posts
31st Jan '13

Oh yikes that scary.

Mummy-2-2-Monsters TTC since Aug 2014; 2 kids; Seven Hills, Australia 9806 posts
status 31st Jan '13

<blockquote><b>Quoting The Tsukuno family:</b>" Oh yikes that scary."</blockquote>



It is, but I try not to think about it. He's such a lively little boy. Nothing brings him down :)

wyatt.earp. 2 kids; Tacoma, Washington 2166 posts
31st Jan '13
Quoting Mummy-2-2-Monsters:" My son had open heart surgery on the 15th feb two years ago. He spent his first birthday in the hospital ... [snip!] ... surgery again when he's 10/13 yo which ever doc says. And a transplant in his 40s. Your little fighter is so beautiful :)"

oh wow!



what a little warrior. so did he have the fontan?

Mummy-2-2-Monsters TTC since Aug 2014; 2 kids; Seven Hills, Australia 9806 posts
status 31st Jan '13

<blockquote><b>Quoting buzz killington:</b>" oh wow! what a little warrior. so did he have the fontan?"</blockquote>




Fontan?



Never heard that word spoken before. Maybe they call it something else here?

Mummy-2-2-Monsters TTC since Aug 2014; 2 kids; Seven Hills, Australia 9806 posts
status 31st Jan '13

Hmm interesting. I just googled lol. And no he didn't have that procedure done.



What they did was create an artificial valve through the hole to the correct chamber and then they closed the hole around it. It will have to be adjusted or replaced as he grows because it doesn't grow with him.

wyatt.earp. 2 kids; Tacoma, Washington 2166 posts
31st Jan '13
Quoting Mummy-2-2-Monsters:" Hmm interesting. I just googled lol. And no he didn't have that procedure done. What they did was create ... [snip!] ... and then they closed the hole around it. It will have to be adjusted or replaced as he grows because it doesn't grow with him."

ohh okay. sorry, im not too familiar w/his defects.



a heart cake is a good idea!

Mummy-2-2-Monsters TTC since Aug 2014; 2 kids; Seven Hills, Australia 9806 posts
status 31st Jan '13

<blockquote><b>Quoting buzz killington:</b>" ohh okay. sorry, im not too familiar w/his defects. a heart cake is a good idea!"</blockquote>




Oh no that's fine :)