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Fabry Disease Baby_Majick 52 kids; Sullivan, Missouri 4031 posts
19th Mar '13

My son has to to do genetic testing because he tested positive for Fabry Disease.... we're going up today to get his testing done, and I was wondering if anyone out there has Fabry that would be able to explain how life is with it. I am so worried for my little man..

tooodles 240 kids; Thailand 5075 posts
19th Mar '13

I have never heard of that but good luck!

Baby_Majick 52 kids; Sullivan, Missouri 4031 posts
19th Mar '13
Quoting :*:CHRiSTiNe:*::" I have never heard of that but good luck!"


I never either, first time hearing about it was yesterday... I was like what?! I hear it's painful or can be without treatment.