Rheumatoid Arthritis/Coalition MunchkinWrangler 4 kids; Rīga, Latvia 46831 posts
3rd Apr '13

So my daughter (finally) had her appointment with the Pediatric Orthopedic Surgeon this morning. I have been anxious about her appointment because her Pediatrician would not give me any information about what was wrong with her foot. She had been having severe foot pain.

Anyways, we learned that her right foot has bone malformations. Instead of two of the bones being rounded and smooth they are flat and jagged, and the two bones are joined together. We were informed that such a problem would most definitely get worse if not operated on, and could eventually stop mobility in her foot and cause even more excruciating pain. This was hard to hear. The doctor also mentioned Juvenile Rheumatoid Arthritis, but she said she was very concerned about trying to make a diagnosis because such a thing isn't common at all in a (nearly) 4 year old. In fact, she's never seen this problem in a child her age. So, as a result, we are waiting until she speaks to her colleagues on Tuesday at the board meeting to try and make a formal diagnosis for the problem.

Regardless, her foot needs surgery. She is in a brace until her surgery. They can't make a surgery date or figure out exactly what they will do to fix it until they get an MRI. The MRI will tell us whether or not the two bones are joined by bone or by tissue and that will effect how they operate, I guess. They should be calling me this week with a date for her MRI, as it has to be scheduled due to needing to sedate her. After that we find out what we are going to do about surgery and when. I'm worried for her, but she's a tough kid. She was excited about the brace this morning, saying it was "cool" and now she is begging to take it off. I'm hoping she keeps it on because if she won't, they said they will need to cast it until surgery.

♥Mrs.Garcia 18 kids; Houston, Texas 13802 posts
3rd Apr '13

Aw poor baby. You guys are in my prays. I just hope its a malformation and not RA. That is extremely young and it is practically unheard of for that age. Fingers crossed. Answers will come... eventually.