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Mrs.Rachael +2.5 Due November 28 (girl); 18 kids; Shreveport, Louisiana 10326 posts
16th Apr '13

Hugs mama. Holden's sensory issues are from his autism but we originally thought it was SPD. Hang in there, remind yourself constantly you are doing a good job and you are a good mom!

ChristinaLynne 3 kids; Pancake, TX, United States 29617 posts
16th Apr '13

<blockquote><b>Quoting Mrs.Rachael +2.5:</b>" Hugs mama. Holden's sensory issues are from his autism but we originally thought it was SPD. Hang in there, remind yourself constantly you are doing a good job and you are a good mom!"</blockquote>




Thanks Rachael! I am trying.

Bobber Due October 1; 1 child; Manitoba 137 posts
16th Apr '13

My LO has it, I knew from the time she was born something was going on when she was less than a day old & would flip anytime I tried swaddling her. We started OT when she was 2.5 & physiotherapy. Speech when she was 3. She also has a seizure disorder & developmental delay. She is 5 now but I held her back one year. I'm so nervous for her to start kindergarten because of all her sensory issues. We have a weighted lap pad for her, wobble cushion, chewies, weighted blanket, we do the sensory brushing so at home she is fine. In preschool she does well too, but she has her own EA & might not come kindergarten. She is a seeker & an avoider too so its so important for her teachers to understand her & her needs. They let her bring in silly putty to self soothe, & wearing wristbands also really helps her. I feel like I am constantly advocating & reading & its so exhausting lol. I remember when she was younger it seemed like the meltdowns would never stop. It's definitely a handful but I'm sure your doing a great job! Its so easy to feel like as parents we are failing them but we've got to prepare them 10x more than a kid who doesn't live with this. It's hard work & we don't get breaks so remember your doing all you can & your doing great!

ChristinaLynne 3 kids; Pancake, TX, United States 29617 posts
16th Apr '13

<blockquote><b>Quoting Derpy:</b>" My LO has it, I knew from the time she was born something was going on when she was less than a day old ... [snip!] ... a kid who doesn't live with this. It's hard work & we don't get breaks so remember your doing all you can & your doing great!"</blockquote>




He has weighted vests, wobble cushions and chewies at school. I feel like his teacher is getting frustrated. :(

Chibs 2 kids; Missouri 12147 posts
16th Apr '13

My son has it,he was just diagnosed last month
He's 27 months old



I didn't even think he had it but after talking to the therapist I realized all of his little tics I thought were normal actually is from SPD.
Loud noise makes him panic
His sleeping is pretty bad
He's a perfectionist,he repeats things,he has to have things the way he wants them and if he can't he has a tantrum (stacking blocks a certain way,if they fall down he may have a tantrum)
He's speech delayed



He has a pretty mild case of SPD though

Bobber Due October 1; 1 child; Manitoba 137 posts
16th Apr '13

<blockquote><b>Quoting ChristinaLynne:</b>" <blockquote><b>Quoting Derpy:</b>" My LO has it, I knew from the time she was born ... [snip!] ... He has weighted vests, wobble cushions and chewies at school. I feel like his teacher is getting frustrated. :("</blockquote>




Well you shouldn't have to feel that way IMO, SPD isn't something a child can help having. Teachers should understand that & be able to adapt their classroom settings to accommodate their needs. When my mom was a teacher she had centres designed for all the SPD kids in her class because none of them got any funding for an EA in the school division. She did say though that not many other teachers she worked with understood the disorder fully & wouldn't make the same accommodations she did in the classroom. Some teachers get it, some don't. Don't beat yourself up over their lack of education towards the disorder. It's not fair though that our kids have to fall behind because of it...that's why I plan on being one very big pain in the ass mommy if I come across one who's lazy or uneducated. All I can say is don't stop advocating, you know what's best for your child & why he does the things he does.

The Blissful Six 4 kids; 1 angel baby; Massachusetts 10260 posts
16th Apr '13
Quoting *PeanutButter*:" My son has it,he was just diagnosed last month He's 27 months old I didn't even think he had it but ... [snip!] ... blocks a certain way,if they fall down he may have a tantrum) He's speech delayed He has a pretty mild case of SPD though"


Yep, I took a piece of foam out of my dd's helmet and she had a melt down. It's so difficult to know what will set her off.

Chibs 2 kids; Missouri 12147 posts
16th Apr '13

<blockquote><b>Quoting The Blissful Six:</b>" Yep, I took a piece of foam out of my dd's helmet and she had a melt down. It's so difficult to know what will set her off."</blockquote>




I hate it
It doesn't matter if try to explain things or try and help him
He has to do it by himself,his way or he freaks



There's an organization here for special needs kids and they loan out equipment (he's getting a weighted blanket) and they have play groups 2 times a week and they go on field trips to places like the zoo. I'm excited to start going with him

The Blissful Six 4 kids; 1 angel baby; Massachusetts 10260 posts
16th Apr '13
Quoting *PeanutButter*:" <blockquote><b>Quoting The Blissful Six:</b>" Yep, I took a piece of foam out of ... [snip!] ... and they have play groups 2 times a week and they go on field trips to places like the zoo. I'm excited to start going with him"


We have my DD in EI. I'll definitely look into stuff like that.

Bobber Due October 1; 1 child; Manitoba 137 posts
17th Apr '13

If any of you are on facebook there is a support group for parents on there. Lots of questions, answers and resources for anyone who wants to check it out.
Here is the link:
https://www.facebook.com/sensoryprocessingdisorderparentsupport?fref=ts

Morieg 3 kids; Fullerton, California 2 posts
21st Apr '13

<blockquote><b>Quoting ChristinaLynne:</b>" Does your child have it? Did it make school harder? We go fur official testing in 2 months (finally!) but Kimdergarten is a complete struggle. I feel like I'm failing as a parent :("</blockquote>



2 of my children have APD. Which is auditory processing delay. One child was diagnosed at 22 months (he is 12yrs old now). Yes, school has been a struggle. 1 child is extremely academic but the auditory missing link is what slows him down. It means if the teacher is going to fast (for him) he isn't getting all info so then he looks as though he isn't focus or is just goofing off. I had him in private school, public school, and back to a private institution that only caters to children who learn differently, it has helped. Now, my other son who also goes to this school was born with a recessive cognitive delay of 38%. And this is hard most days but its your child so what can you do but put your best foot forward. My advice, it's a bumpy road you see it in Kinder already! Whatever you
can do to get your child "the tools" he/she needs to survive school and keep your sanity! DO IT! This is no easy road. Find parents who have children similar its a much more understanding help group. Unfortunately, we live in a society that isn't too accepting of children "who learn differently" and guess what we all do learn differently some of us can't sit at a desk and listen to the teacher talk and we are suppose to just know it. Be patient, I know after awhile its frustrating and then you feel like a bad parent. Remember, your kid doesn't want to be this way he/she was just born this way. Many will say they "catch up" well I haven't seen that proof. But what I have seen is that they learn to adapt. Remember get your child the tools he/she will need to adapt. And when I feel like I can't do this anymore, I'm reminded that the beginning never constitute the ending. Be strong for your child because if your not, who will? Therapy sessions please take your child, speech, etc...these are necessary. I have had many of road trips of this path with my kids but you have to be diligent. I will be the first admit sometimes I feel like giving up, but it's my kid I can't give up in him because he may give up on himself.
God Bless you and stay prayed up. It's the only reason MY mind hasn't exploded.

Morieg 3 kids; Fullerton, California 2 posts
21st Apr '13

<blockquote><b>Quoting ChristinaLynne:</b>" Does your child have it? Did it make school harder? We go fur official testing in 2 months (finally!) but Kimdergarten is a complete struggle. I feel like I'm failing as a parent :("</blockquote>



2 of my children have APD. Which is auditory processing delay. One child was diagnosed at 22 months (he is 12yrs old now). Yes, school has been a struggle. 1 child is extremely academic but the auditory missing link is what slows him down. It means if the teacher is going to fast (for him) he isn't getting all info so then he looks as though he isn't focus or is just goofing off. I had him in private school, public school, and back to a private institution that only caters to children who learn differently, it has helped. Now, my other son who also goes to this school was born with a recessive cognitive delay of 38%. And this is hard most days but its your child so what can you do but put your best foot forward. My advice, it's a bumpy road you see it in Kinder already! Whatever you
can do to get your child "the tools" he/she needs to survive school and keep your sanity! DO IT! This is no easy road. Find parents who have children similar its a much more understanding help group. Unfortunately, we live in a society that isn't too accepting of children "who learn differently" and guess what we all do learn differently some of us can't sit at a desk and listen to the teacher talk and we are suppose to just know it. Be patient, I know after awhile its frustrating and then you feel like a bad parent. Remember, your kid doesn't want to be this way he/she was just born this way. Many will say they "catch up" well I haven't seen that proof. But what I have seen is that they learn to adapt. Remember get your child the tools he/she will need to adapt. And when I feel like I can't do this anymore, I'm reminded that the beginning never constitute the ending. Be strong for your child because if your not, who will? Therapy sessions please take your child, speech, etc...these are necessary. I have had many of road trips of this path with my kids but you have to be diligent. I will be the first admit sometimes I feel like giving up, but it's my kid I can't give up in him because he may give up on himself.
God Bless you and stay prayed up. It's the only reason MY mind hasn't exploded.