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Colon Cancer Summerfrost 51 kids; Massachusetts 6802 posts
18th Apr '13

For a while now, Dh has been extra sleepy. Around the same time, his primary care dr noticed he was anemic. Apparently that's a big deal when you're a guy. Dh's dr is also a little bit on the thorough side, so that led to months of testing. Eventually, they sent Dh for a colonoscopy. They found 30 to 50 polyps. For those of you who don't know what's normal, people over 50 might have 1 or 2 in their lifetime. My dh is 37.



They removed the first 10 they found before they realized how bad it was. The polyps they tested were negative for cancer, but they were the smaller perimeter ones. The way they explained it is that he might have cancer now in the ones they haven't removed. In fact, it's likely that there are cancerous ones in the bunch. If they aren't cancer yet, they will be soon.



They want to remove part of Dh's colon or possibly all of it, but we need to find out the results of the genetic stuff first. If Dh has some sort of genetic polyp issue which is rare... about 2-3% of polyps are caused by a genetic disorder but likely in this situation because of the amount of polyps he has... It means he'll need his entire colon removed and checked for other types of cancer. The genetic disorders make it more likely for him to develop other types of cancer too. My sons will also have to be tested and go for colonoscopies starting at 20.



Honestly, I'm just a mess. We've had such a rough several years with me getting ketoacidosis(type 1 diabetes), my son dying, and my other pregnancies being high risk and miserable. All of that was within the past 6 years. Now I have these 3 little kids to raise (my oldest is 4), and dh can barely stay awake past 6pm most nights.



I don't even know how to begin to process all of this. I feel like we're gearing up for this fight and I have no reserves left. I feel defeated and we haven't even started yet.



I guess the purpose of this is finding out some info from anyone who's had these types of issues before. Maybe a little company too so i don't lose my mind. :)

The Pretender 2 kids; Brazil 1215 posts
18th Apr '13

Wow, that is an awesome, vigilant doctor that you have that wouldn't leave the anemia alone. THAT is an example of a doctor really being a patient's advocate.



Honestly, it is awesome that you were able to discover this before he had bowel issues/symptoms.



Hang in there- it sounds like he has a good team of docs on his side.

user banned 3 kids; Texas 26201 posts
18th Apr '13
Quoting Summerfrost:" For a while now, Dh has been extra sleepy. Around the same time, his primary care dr noticed he was anemic. ... [snip!] ... out some info from anyone who's had these types of issues before. Maybe a little company too so i don't lose my mind. :) "


Idk what to say, other then HANG IN THERE! Sometimes you find strength out of no where.



I hope everything turns out ok!

Summerfrost 51 kids; Massachusetts 6802 posts
18th Apr '13
Quoting The Pretender:" Wow, that is an awesome, vigilant doctor that you have that wouldn't leave the anemia alone. THAT is ... [snip!] ... to discover this before he had bowel issues/symptoms. Hang in there- it sounds like he has a good team of docs on his side. "


Well that's the thing .. the anemia was caused by internal bleeding. He could have been having bowel symptoms for years without knowing anything. That's why colon cancer has such a low survival rate in younger people. He did get very lucky though with his primary care dr. I mean if my OB had been as proactive as my hubby's dr, things might have gone much differently with the pregnancy where I lost my son.



My concern though is that we're seeing some cancer dr's locally. it's already been about a month and a half since they figured out he has polyps and the surgery date keeps getting pushed back.



The results from the blood work they did on tuesday won't be back for 4+ weeks from now because they have to sequence his DNA. He can't see the surgeon to even start the process to removing however much they need to remove of his colon for 5+ weeks. Then they have to redo a colonoscopy to tattoo where the polyps begin and end. After that, they can go in and remove it. So ... another 2 to 4 weeks is my rough guess.



Waiting doesn't make me feel real comfortable when he's already acting so sick now. I mean this isn't getting better just sitting in there taking over his body. I guess i would feel better if he was at some of the big wig dr's in boston instead of some local dr's. (Anybody know of any?)




I am also really stressed because I'm on kid duty with 3 kids around the clock and not sleeping all that great. I can't talk to the hubby about any of this because I don't want him to know exactly how stressed and scared I am.



Thanks guys for the well wishes. Fingers crossed this is a relatively easy fix with not many long term side effects.