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Shriners in the morning... Mama2theNat&Coll 2 kids; Chicopee, Massachusetts 867 posts
9th May '13

My 4 yo dd has her first Ortho consult tomprrow at 9:30 am for her pectus excavatum. She was born with"funnel chest". Im not sure what to expect. I am afraid. Anybody have experience withPE? She was born this way so PE is normal for us but treating it is new to me. What is to be expected as far as testing.

Autumn Whisper 1 child; Utah 9977 posts
9th May '13

My son has it, too, though his is really not bad at all, just slightly concave. He's had numerous chest x-rays (born preemie, his lungs have been delicate) and there is no organ displacement or diminished lung capacity. His pediatrician (nor any of the doctors he's ever seen) advises that it is not severe enough to warrant treatment. He is 4 years old, as well.



How severe is your daughter's?

MunchkinWrangler 4 kids; Rīga, Latvia 46840 posts
9th May '13

A 3-year-old boy in my classroom has that. I'm unsure if he is being treated for it. It seems to have gotten worse as he has gotten older. He has been in my class since he was 18 months old.



All I know about it is that it can be mild and it can be something that they can live normally with, or it can get a lot worse as they get older and cause breathing/heart problems. I think at 4 years old they will probably just diagnose her, maybe do a scan to see how her organs are arranged in position to her chest bones, and then probably just watch her and take note of how she grows and changes as she gets older. I'd think that if she isn't having an issue with breathing or anything right now, that it would be more of a watch and see, type thing.



We just started going to Ortho for my daughter. She has a tarsal coalition in her foot. The bones in her foot are misshapen and fusing together, so she's in a cast to reduce swelling/pain. We;re waiting on an MRI to determine if she needs surgery or if they think the bones will fully fuse and we could leave them that way. All of the doctors here in Ortho are incredibly nice! I hope its the same experience for you. They make her appointments fun/enjoyable for her!

I'm me 4 kids; Kentucky 3109 posts
9th May '13

I'm not familiar with it but i just wanted to say good luck and I hope everything goes well.

Mama2theNat&Coll 2 kids; Chicopee, Massachusetts 867 posts
9th May '13

Her peditrician said there was enough change in it to warrent getting checked by Shriners. I made this appintment 6 months ago. Looking at her baby pics to now there is definite increase in depth and diameter ofthe pit. Her bio dad has it along with heart issues which adds to my worry...and lately her exercise tolerance has been a bit less...pain in rib area... i wont know how bad it is or mild either until tomorrow...its all new to me.

Autumn Whisper 1 child; Utah 9977 posts
9th May '13
Quoting Mama2theNat&Coll:" Her peditrician said there was enough change in it to warrent getting checked by Shriners. I made this ... [snip!] ... has been a bit less...pain in rib area... i wont know how bad it is or mild either until tomorrow...its all new to me."


I'm very sorry to hear that, but I'm glad you are getting it checked out. I hope it is good news for her heart, and that treatment is not traumatic.

Mama2theNat&Coll 2 kids; Chicopee, Massachusetts 867 posts
9th May '13

Ty all btw and Munchkin, goodluck for your daughter too.

Mommy of a giggler! 2 kids; Edmonton, Alberta 9017 posts
9th May '13

My son has it. His doctors said since he doesn't seem to have breathing or energy issues, they aren't really concerned. It's gotten worse as he ages (he's almost 6) but then he'll have a growth spurt and it will look better, then looks worse again, etc.



My docs said it usually is around teenage years that they actually do something about it because that's when it either becomes a real problem, or proves to not be one.

Mama2theNat&Coll 2 kids; Chicopee, Massachusetts 867 posts
10th May '13

Hello! Finally sitting down...everything went great! She has MILD P.E. no treatment right now. We go back in 2 yrs! Woo hoo! There is a researcjh study going on using laser tech for imaging. We took time to particiate. EVERYONE we encountered was amazing. Kifd-centered and friendly. TDoc said surgery probably between 11 and 13 and they do the Nuss procedure there. I believe its the less invasive versus the Ravich...the bar stays in 2to 3 yrs! Will worry about that later...for now all is well! :)

Autumn Whisper 1 child; Utah 9977 posts
10th May '13

<blockquote><b>Quoting Mama2theNat&Coll:</b>" Hello! Finally sitting down...everything went great! She has MILD P.E. no treatment right now. We go ... [snip!] ... its the less invasive versus the Ravich...the bar stays in 2to 3 yrs! Will worry about that later...for now all is well! :)"</blockquote>




So she will do surgery between 11-13?



Very happy for you and her that she is all right now!