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Cystic Fibrosis Allissa Specht 35 kids; Essexville, Michigan 5426 posts
14th May '13

Can anybody link me to a reliable website with information about CF in children? Or, do you know off hand what the symptoms of CF would be in a child? What it causes? What to look for?

MzDENISE 1 child; California 15365 posts
status 14th May '13

From the top of my head:
excessive mucous build up
wheezing
increased work of breathing (may have nasal flaring, use of accessory muscles to breath)
greasy stool
frequent resp. infections



If you really want to know if a child has it, the best thing to do is ask his/her Dr. for a sweat test.

Allissa Specht 35 kids; Essexville, Michigan 5426 posts
14th May '13
Quoting MzDENISE:" From the top of my head: excessive mucous build up wheezing increased work of breathing (may have nasal ... [snip!] ... resp. infections If you really want to know if a child has it, the best thing to do is ask his/her Dr. for a sweat test. "


We are in the process of getting a BUNCH of testing done. Just want to do some research on my own first. That way I kind of know what to expect going in just in case it is CF

MzDENISE 1 child; California 15365 posts
status 14th May '13
Quoting Allissa Specht:" We are in the process of getting a BUNCH of testing done. Just want to do some research on my own first. That way I kind of know what to expect going in just in case it is CF"


you should visit the special needs forum on here. I've seen a few threads for moms with children with CF. They can probably help you out a ton.

Allissa Specht 35 kids; Essexville, Michigan 5426 posts
14th May '13

Ahhhh good point! I never thought to look there!