my son has SECONDARY hypothyroidism, that they used to think was congenital, but now they know it is most definatly secondary, and that he does infact have a thyroid that is working, just not up to par with what his body needs yet.
he has been 100% stable on his medication for 16 months now (since 2 months old) hes on 25mcg, and has gained 18lbs since diagnosis, and is still completely stable with a level right in the middle of normal.
his endocrinologist SEEMS very pleased with him, sees us, sees him, says okay well see you next visit.
HOWEVER, i noticed on his print out last time that he has all these friggin diagnoses that he doesnt actually have on there (congenital hypothyroidism, and congenital pigeon chest also has his heart defect billed 3 different ways, d-tga, dtga with IAS, malposed great arteries (same thing as d-tga) ) which really pisses me off, he also has him billed as a "complex visit" when its nothing at all complex-- i worked in drs office before so i realize he is doing this in able to bill for more. he also still has us going every 4 months, when in actuality he should be going every 6months-1year since he has been completely stable, he is even talking about taking him off once he hits 3 and he is "95% certain" his thyroid will kick in fully and he wont have to take it his whole life..
soo all this shit pissed me off, i mean i dont need my kid having all these "congenital" diagnosees on his chart. what happens when he needs to get his own insurance or take out a life insurance policy? theyre going to look at this shit and he already has the heart defect playing against him, he doesnt need any more.
would you switch doctors based on principle? even if that meant you had to drive farther? (45m vs 1.5h)
I would definitely switch doctors if my child's doctor was using invalid diagnosis codes. That's insurance fraud.
i wouldnt say theyre "invalid" since when he started going he was assumed to have congenital hypothyroidism, but the chest thing is 100% from his surgeries, nothing congenital about that, and idk why the hell he has his ONE heart defect listed three times.
<blockquote><b>Quoting I Stab People:</b>" i wouldnt say theyre "invalid" since when he started going he was assumed to have congenital hypothyroidism, ... [snip!] ... is 100% from his surgeries, nothing congenital about that, and idk why the hell he has his ONE heart defect listed three times."</blockquote>
That's weird. I'd switch doctors. Like you said, what if this messes up something going forward with him. Have you asked this doctor why he has all this stuff in his chart?