My sons aug comm device arrived! He's been using it a bit today. It's hard to navigate for him on his own 100% right now because it's not programmed correctly. That's getting done on Monday! As soon as he saw it when I opened the box he was signing, 'Thank you, Thank you, Thank you'. And touching it today and doing the same thing with mama.
I'm so hoping the insurance doesn't find a reason to deny it after we got this far. I hope the addendum that is written is enough. And my son has his voice. Getting approved for the rental was huge though. Thank god. We made it this far. Just 4 more weeks until we know. He is so eager to use it though. And even today with just a little help he was initiating tons of stuff.
Thanks for reading (:
Good for him! :)
That's so awesome!!! This brought tears to my eyes!!!
That is fantastic-what a gift!!!!!! May I ask what device it is, since we are currently considering an I-pod and proquolotogo app?
<blockquote><b>Quoting lolajessup:</b>" That's so awesome!!! This brought tears to my eyes!!!"</blockquote>
Aww. I keep getting Teary eyed looking at it. This is so amazingly huge. Just. Huge.
To be honest, I've been a little worried. IDK if that's the right word.. I look to the future and it makes me nervous. The fact that he can't talk keeps being brought up by other kids in all their innocence. And it makes me scared. He's almost 4. And so many simple things are still a struggle. And some things he is so incredibly smart and have no way to tap into his little mind, hear his questions, observations and to add to the knowledge he already has. I feel mad. Mad at the stupid on call dr. Who wouldn't get out of bed and deliver him when he needed out. And for me not advocating and demanding action. IDK why, but getting this device has opened up a whole new can of emotions.
<blockquote><b>Quoting mama3trish:</b>" That is fantastic-what a gift!!!!!! May I ask what device it is, since we are currently considering an I-pod and proquolotogo app?"</blockquote>
We got an iPad, but it's not practical for my LO because he exists apps. And the battery life is so short.
We got a Novachat 7. It has a battery life of 8-10 hours, plus an external audio box so the voice is loud. I think it will be programmed tomorrow to sound like a little boy talking instead of a woman. As it came with a hard handle for holding and a shoulder strap so he wears it.
<blockquote><b>Quoting ♫ boobook ♫:</b>" <blockquote><b>Quoting lolajessup:</b>" That's so awesome!!! This brought tears to ... [snip!] ... And for me not advocating and demanding action. IDK why, but getting this device has opened up a whole new can of emotions."</blockquote>
Just take it one day at a time and celebrate the little things, like today :D what happened during birth if u don't mind? Idk if you've ever told me.
<blockquote><b>Quoting lolajessup:</b>" <blockquote><b>Quoting ♫ boobook ♫:</b>" <blockquote><b>Quoting ... [snip!] ... a time and celebrate the little things, like today :D what happened during birth if u don't mind? Idk if you've ever told me."</blockquote>
I'm fixing dinner. But, I will write out his labor and birth after the kids are in bed. It will take a bit.
I was due Oct. 1st. On Sept. 24th out of no where my water broke at just after 10am. No contractions. No sign of labor. I hadn't even lost my mucous plug. I called my gramma to let her know it was time to come get E. and my husband had been at a profit sharing meeting so I called him at work. It was just about noon by the time I had gotten to labor and delivery and was having mild contractions at this point. I remember our old ped was walking in and had said, what are you doing here?! I said, having a baby laughing through a contraction and she was shocked. I wasn't that big and she kept drilling me if I was really, really sure I knew my due date and really concerned. I was like, no really I'm okay lol.
So I got in my room and the nurse had me change into a gown and hooked me up to monitors. And my OB calls to talk to me on the phone and we kind of chatted for a minute, she was checking in on me. At this point my contractions are mild, but no breaks. Just one contraction after another. And we were there for maybe an hour when the nurse came in for the first time and said, you need to roll over on your side. I was confused and trapped with the wires and she said, you need to roll over now! So I roll and she uses the monitor I was on to get his heart rate and watch it. It goes back to normal. So she has me lay back down on my right side and gets me situated. She leaves for awhile and at this point I'm on the phone with my aunt telling her I am definitely in labor and to come whenever she's ready. (2hr drive and she had just got off work).
Around 3 my OB and the same dr who saw me through my first pregnancy called my room to check on me and told the nurse to start pitocin to get my contractions stronger and more regular instead of so frequently. And she was going off shift so she needed to get in touch with the on call from here on out. At this point the nurse said, I have never had ____dr to call and check on a patient and I've been working here for years. She must really care about you. And that kind of made me tear up because she was wonderful and caring and I did feel like she was on my side.
After that the L&D nurses were trying to hook up the pitocin but his heart rate was dipping. So they were having me get on my side, roll to my back, roll to my other side, up on hands and knees trying to get him in a good position to start the pitocin. And his heart rate would be okay for a bit and then drop again and there I was rolling, laying, rolling, up and hands and knees. After awhile of this another nurse comes in and calls the on call. I'm told we're giving up the pitocin. We're going to see how your body does on it's own. So I'm like okay, can you check me? And they said yes. There was hardly any change.< I don't remember numbers>
Around 10 I had been on my hands and knees and rolling around and super uncomfortable. So I asked for some pain meds, nothing too much. Just enough to get the edge off. The nurse said, I don't feel comfortable giving you pain relief and I doubt I will find another nurse to administer, but I can go look for you- real bitchy like. And I'm like why not? My last labor I was offered pain relief before the epi. I need to relax and I'm tired. And she said, because you're headed for a c-section I can see it now, and if we have to deliver your baby after I give you something than he could have trouble breathing, he could have complications. And I'm like, what? Why am I headed for a c-section, and she said, because your baby is't tolerating labor. And I had said, well then can you call for an epi. I can't handle this. And she said, that would be fine. So I was on my hands and knees for house already and when the anesthesiologist got to my room I had to stay that way until he had everything set up. As soon as he was ready, it was quick getting it placed and back to hands and knees because his heart kept dipping. ^^ sometime in those hours they had placed internal monitors on his scalp. But the time I got the epi my aunt was there. Maybe 6 or 7.
Around midnight, I was on hands and knees still. 11ish hours of flipping around and being on my hands and knees. I think all the nurses on the L&D floor were in my room. You need to flip, you need to turn, turn, turn, roll over. And my aunt and husband are somewhere. My aunt's taking pictures (I still haven't seen) they are on the phone with the on call getting medicine out, and I'm like what's going on? What's wrong? And I hear if his heart rate dips one more time we need to stop your labor. And I'm like I thought we were trying for pitocin or to let my body do it's thing eventually. And she says, no. This is life and death. Your babies heart rate just dipped into the 30's for over 3 minutes. It has happened several times before, but it came up quicker the other times. And then she's stabbing me in the thigh with the meds. And she's ordering me around yet again because his heart rate wouldn't come up.
And I said, shouldn't the dr. be taking him out? And she told me word, for word. " drowning victims don't suffer the consequences of drowning until they have been under water for more than 5 minutes".
At this point still on my hands and knees sometime around 1 in the morning. My nurse has a stool parked next to my bed reading the monitor all night long. Every now and then helping me move and adjust to help me.
At 7am my OB comes into my room- my husband sleeping on the couch, my aunt taking her rotation bent over my back massaging my head. And she says, Angela- you need a c-section, this is an emergency and we are leaving right now. She kisses my cheek, someone throws a blanket over my butt so I'm not flashing the whole world my vag and butt and they start wheeling me fast out of the room. My aunt is putting on scrubs and I start yelling, I need my husband, he's the dad. I need my husband! And my aunt is all shocked and confused so I look to the nurse and I'm like PLEASE GET MY HUSBAND. So the last thing I see is my husband looking very confused and sleepy holding scrubs.
I get to the surgery room and they have me transfer to this tiny ass surgery table still on my hands and knees. Finally my hubby is with me. And then my dr. He was born at 7:35am. They measured him and sucked him with the tube thing a couple of times to get him to cry well and I saw him for just a second before they rushed him to the nursery.
I went to recovery by myself. My husband and my aunt were watching his first bath, touching him, taking pictures and holding him. Then they came back and showed me pictures.They had to observe him for a bit and then they brought him to my room.
My OB came into talk to me about him. And she had said he was constricted by the cord. It was wrapped really tightly around his chest and when I would get a contraction it would squeeze his chest and heart.
I know I had a rough labor but the thing that will always stand out to me was the nurse saying, DROWNING VICTIMS DON'T SUFFER THE CONSEQUENCES OF DROWNING UNTIL THEY HAVE BEEN UNDER THE WATER FOR MORE THAN 5 MINUTES.
I'm sorry that was a book. Didn't really mean for it to end up they long...
So they just let him go minutes at a time several time without oxygen? That's so sad. So the nurse just kept delaying everything or the drs? I'm sorry you went through that :( obviously a csection is not everyone's first choice but that just seems excessive on their part to delay soooo long.
<blockquote><b>Quoting lolajessup:</b>" So they just let him go minutes at a time several time without oxygen? That's so sad. So the nurse just ... [snip!] ... that :( obviously a csection is not everyone's first choice but that just seems excessive on their part to delay soooo long."</blockquote>
It was the on-call dr. The nurse I had was pretty bitchy, but I think she was stressed. She kept calling the dr and telling me I needed a section.
And yeah, it was such a stressful labor and delivery. When my room was full of nurses IMO is when I should have been wheeled back. Not stuck in my room with people yelling. If it wasn't serious I wouldn't have been on my hands and knees or flipping around in bed for the better part of 18.5 hours.
I am SO happy for you, and for him that he can communicate! It can eliminate so much frustration.
I read your story.. I am in shock. Really unessecary to put you and your baby through all that. My son too had a cord incident at birth, but he wasnt breathing, and I wasnt awake. Different situations entirely I know but some similarities.
<blockquote><b>Quoting j0des(+2):</b>" I am SO happy for you, and for him that he can communicate! It can eliminate so much frustration. I ... [snip!] ... cord incident at birth, but he wasnt breathing, and I wasnt awake. Different situations entirely I know but some similarities."</blockquote>
Today was very exhausting, we started the set up. I received some goals over the course of the next week.
We went to the zoo after and I was asking what did you see and he would get right into the wild animals and point to the ones we just looked at it. He was also asking to use it to request looking at different things. So sweet!!!
I'm sorry you and your son went through that. Is he okay?