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Cystic Fibrosis Alaina Jo Due December 25 (boy); Kent, Washington 10 posts
16th Aug '13

After getting my blood done it turns out I'm a carrier for cystic fibrosis. My boyfriend then went and got blood drawn and he too is a carrier for cystic fibrosis. There is a 25% chance our baby will be born with this genetic disease, I had an amniocentesis done (hurts like hell btw) we will find out next week the results. I'm 21 weeks pregnant with my first child, this has been a scary last month with finding all of this out and playing the waiting game. I'm trying not to worry and stress because I know it's not good for the baby, has anyone else experienced anything like this? I feel as though it is rare that my boyfriend & I are both carriers and have to go through all of this. Any advice would be appreciated, thanks!:roll:

Red Bottom TTC since Apr 2014; 2 kids; Middelfart, Denmark 15307 posts
16th Aug '13

It's not rare at all for white adults to be carriers for CF. Your kids have a 3/4 chance of being carriers, so being a carrier is incredibly common.

lolajessup 3 kids; 1 angel baby; Beaverton, Michigan 44070 posts
16th Aug '13

Don't worry Hun. I've known a couple kids with cf and they're fine just might end up in the hospital with respiratory issues in the winter. If you live where's it's warm and dry it can help alleviate that. And they have enzymes they sprinkle on their food. They're still normal kids they just aren't supposed to be around other kids with cf I've been told (not sure how that works with siblings).

Alaina Jo Due December 25 (boy); Kent, Washington 10 posts
16th Aug '13

I know that, 1 in 30 caucasians are carriers, but the chances of me and my boyfriend being carriers that I don't know if it's that common. I'm nervous if others have experienced this and what the outcome is. I hate waiting and waiting and waiting for my final answer it has me stressed out!

Red Bottom TTC since Apr 2014; 2 kids; Middelfart, Denmark 15307 posts
16th Aug '13

<blockquote><b>Quoting Intrepid Detective Munch:</b>" Don't worry Hun. I've known a couple kids with cf and they're fine just might end up in the hospital ... [snip!] ... normal kids they just aren't supposed to be around other kids with cf I've been told (not sure how that works with siblings)."</blockquote>




CF is different for different people. The life expectancy is much higher than it was just a decade ago. Closer to 40 now. It's a sodium deficiency. But medicine has come a long way in a short period of time. Never heard anything about cf patients not being around other cf patients.

lolajessup 3 kids; 1 angel baby; Beaverton, Michigan 44070 posts
16th Aug '13

<blockquote><b>Quoting Alaina Jo:</b>" I know that, 1 in 30 caucasians are carriers, but the chances of me and my boyfriend being carriers that ... [snip!] ... experienced this and what the outcome is. I hate waiting and waiting and waiting for my final answer it has me stressed out!"</blockquote>




Try not to stress. The girl who goes to my church has two older sisters without it. So it's not like every kid WILL get it. And IMO there's worse things a child could get :?

Alaina Jo Due December 25 (boy); Kent, Washington 10 posts
16th Aug '13

Thank you, I just hope I don't have to face the question to terminate or to have my baby. My boyfriend feels that because the disease is bad we should terminate, so I'm hoping I don't even have to experience that situation... Good thoughts :)

Red Bottom TTC since Apr 2014; 2 kids; Middelfart, Denmark 15307 posts
16th Aug '13

<blockquote><b>Quoting Alaina Jo:</b>" I know that, 1 in 30 caucasians are carriers, but the chances of me and my boyfriend being carriers that ... [snip!] ... experienced this and what the outcome is. I hate waiting and waiting and waiting for my final answer it has me stressed out!"</blockquote>




It's extremely common. Your baby has 3 quarters out of a dollar chance, at being perfectly healthy. Don't stress, the odds are in your favor.

lolajessup 3 kids; 1 angel baby; Beaverton, Michigan 44070 posts
16th Aug '13

<blockquote><b>Quoting Red Bottom:</b>" <blockquote><b>Quoting Intrepid Detective Munch:</b>" Don't worry Hun. I've known a ... [snip!] ... has come a long way in a short period of time. Never heard anything about cf patients not being around other cf patients."</blockquote>




Idk I thought it was weird too but that's what the lady at my church said :? She held her back a grade cause there was another child with it in her grade.

Red Bottom TTC since Apr 2014; 2 kids; Middelfart, Denmark 15307 posts
16th Aug '13

<blockquote><b>Quoting Alaina Jo:</b>" Thank you, I just hope I don't have to face the question to terminate or to have my baby. My boyfriend ... [snip!] ... the disease is bad we should terminate, so I'm hoping I don't even have to experience that situation... Good thoughts :)"</blockquote>




I would NEVER consider terminating for CF. I'm appalled they'd even allow it. I've known people with CF who are married with kids.....

Red Bottom TTC since Apr 2014; 2 kids; Middelfart, Denmark 15307 posts
16th Aug '13

<blockquote><b>Quoting Intrepid Detective Munch:</b>" <blockquote><b>Quoting Red Bottom:</b>" <blockquote><b>Quoting Intrepid ... [snip!] ... too but that's what the lady at my church said :? She held her back a grade cause there was another child with it in her grade."</blockquote>



Very strange....not to mention that's just seems weird. They're still in the same school and you're not going to be around everyone in your grade.

lolajessup 3 kids; 1 angel baby; Beaverton, Michigan 44070 posts
16th Aug '13

<blockquote><b>Quoting Alaina Jo:</b>" Thank you, I just hope I don't have to face the question to terminate or to have my baby. My boyfriend ... [snip!] ... the disease is bad we should terminate, so I'm hoping I don't even have to experience that situation... Good thoughts :)"</blockquote>




Ate you confused about what cf is? It is NO reason to abort. Yeah it would alter your life but its not bad. Yeah your kid would have meds, breathing treatments, specialists, etc., but its just something you'd adapt to. You may end up with extended hospital stays during cold season.

Alaina Jo Due December 25 (boy); Kent, Washington 10 posts
16th Aug '13

yes, up to 24 weeks they can abort. I'm not going to by any means, I just hope everything will be ok and either way, everything happens for a reason. I will love my child NO matter what.

Mommy-of-3-awesome-kids 3 kids; Go Hawks, IA, United States 2562 posts
16th Aug '13

I went to school with a girl that had cf she is around 30 now I believe she just has to see a pulmnologist ( not spelling right sorry) every once in awhile. I also went to school with a guy and him and his wife have kids each of them have cf they are doing good from what I can tell. Try not to worry and relax.

Red Bottom TTC since Apr 2014; 2 kids; Middelfart, Denmark 15307 posts
16th Aug '13

<blockquote><b>Quoting Alaina Jo:</b>" yes, up to 24 weeks they can abort. I'm not going to by any means, I just hope everything will be ok and either way, everything happens for a reason. I will love my child NO matter what."</blockquote>




That's good to hear. Sounds like your boyfriend needs to educate himself on what cf is.