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Celiac Disease ♥Mama Constantine 2 kids; 3 angel babies; Texas 5798 posts
17th Aug

My 13 month old is lactose intolerant. Lately, we have noticed that she is extremely sensitive to gluten as well. She bloats, spits up, and has pale diarrhea if she were to eat anything with gluten. We've been careful with what we give her, and she needs to go to her pedi anyway, so we'll ask when we get there, but how do they test little ones for Celiac Disease? DH read something where they go in and do a biopsy on the intestine... is that accurate?
How do you treat it? I'm so lost.

Hy'ska 2 kids; Washington 50677 posts
17th Aug

<blockquote><b>Quoting ♥Mama Constantine:</b>" My 13 month old is lactose intolerant. Lately, we have noticed that she is extremely sensitive to gluten ... [snip!] ... DH read something where they go in and do a biopsy on the intestine... is that accurate? How do you treat it? I'm so lost. "</bloickquote>




It's not an accurate test at that age. My 3.5 year old has celiacs. We did a blood test (which isn't very accurate until 5/6ish) and eliminated gluten and brought it back a few times to see how he reacted:

♥Mama Constantine 2 kids; 3 angel babies; Texas 5798 posts
17th Aug
Quoting Hy'ska:" <blockquote><b>Quoting ♥Mama Constantine:</b>" My 13 month old is lactose intolerant. ... [snip!] ... test (which isn't very accurate until 5/6ish) and eliminated gluten and brought it back a few times to see how he reacted:"

So, will they even test her for it, being so little?

Hy'ska 2 kids; Washington 50677 posts
17th Aug

<blockquote><b>Quoting ♥Mama Constantine:</b>" So, will they even test her for it, being so little? "</blockquote>




Maybe but probably not.



They'll probably have you see if eliminating helps

Allissa Specht 35 kids; Essexville, Michigan 5426 posts
17th Aug

They will test, a blood test generally to begin with, then if it is negative they will do a biopsy of the intestine. My daughter was just tested at 4 1/2. The blood test is not very accurate. The thing is, you HAVE to give them gluten for these tests. They need a buildup of it in their system in order for the tests to show anything as Celiacs is an immune disorder.

♥Mama Constantine 2 kids; 3 angel babies; Texas 5798 posts
17th Aug
Quoting Allissa Specht:" They will test, a blood test generally to begin with, then if it is negative they will do a biopsy of ... [snip!] ... tests. They need a buildup of it in their system in order for the tests to show anything as Celiacs is an immune disorder."

How long do you have to give it to them? Like 2 days or weeks?

Allissa Specht 35 kids; Essexville, Michigan 5426 posts
17th Aug

Our GI doctor said two weeks to get good results.

Hy'ska 2 kids; Washington 50677 posts
17th Aug

<blockquote><b>Quoting Allissa Specht:</b>" Our GI doctor said two weeks to get good results."</blockquote>



:!: ours too



It was a miserable 2 weeks didn't leave the house much while we loaded him up.

Allissa Specht 35 kids; Essexville, Michigan 5426 posts
17th Aug

We never really went gluten free because we knew we would have to go back anyways lol. Her test results came back normal besides immature villi in her intestinal tract. So now they think she has CF

♥Mama Constantine 2 kids; 3 angel babies; Texas 5798 posts
17th Aug
Quoting Hy'ska:" <blockquote><b>Quoting Allissa Specht:</b>" Our GI doctor said two weeks to get good ... [snip!] ... good results."</blockquote> :!: ours too It was a miserable 2 weeks didn't leave the house much while we loaded him up."


I have had her go gluten free for a week, and I noticed she wasn't so bloated, her poop was normal, and she didn't spit up!



I give her gluten free snacks, and make meals as gluten free as possible.



I'm not looking forward to this... at all.
I've read about it, and all it does is scare the f**k out of me.

Allissa Specht 35 kids; Essexville, Michigan 5426 posts
17th Aug
Quoting ♥Mama Constantine:" I have had her go gluten free for a week, and I noticed she wasn't so bloated, her poop was normal, ... [snip!] ... as possible. I'm not looking forward to this... at all. I've read about it, and all it does is scare the f**k out of me. "


It takes more than a week I believe to actually notice a difference if it is a gluten issue. If I remember correctly, I believe the GI specialist said that it takes 2-4 weeks to notice any changes. I may be wrong though!

♥Mama Constantine 2 kids; 3 angel babies; Texas 5798 posts
17th Aug
Quoting Allissa Specht:" It takes more than a week I believe to actually notice a difference if it is a gluten issue. If I remember ... [snip!] ... If I remember correctly, I believe the GI specialist said that it takes 2-4 weeks to notice any changes. I may be wrong though!"

Wow.. so it may be something she eats just every day that's causing all this? Cause I completely changed everything that week. Hmmm...



I'll talk to her pedi about it. Thank you for all the info, ladies.