Reply
KiSS Syndrome ??? sick_girl Due February 24; 17 kids; Essen, Germany 3089 posts
10th Aug '08

So, Scarlett is going to be 6 weeks old tomorrow. Since she was born she has been very very fussy and crys all the time, even in her sleep (when she sleeps). I have taken her to 4 diffrent doctors and i have also taken her to the emergency room twice. Everyone tells me it is only gas. Well i know that babies get gas but she has it all day every day. I give her drops in her bottle for gas, i give her special formula for gas. i tried baths and massaging her belly. i have tried everything. NOTHING helps. i took her to the doctor on monday and again she said it is only gas. i took her again on thursday and this time the doctor got to see how she screams all the time and finally she could see this isn't just gas. Now the doctor thinks she has a thing called KiSS Syndrome. As far as i could find out it is a neck injury from the trauma of birth. It is a very new thing and i can't find very much info on it.



so what i need to know is has anyone heard of this? Does anyone know any kids who have had this? I am taking her to a specialist tomorrow and i am so scared. I don'T know what they are going to do, if anything. I am also scared because if it isn't this that she has and no one can help with the scareming all the time i have no idea what i am going to do. I have no one but my husband to help me and he works full time. So if anyone has any info or advice or anything i would be very thankfull.

mama to 2 pumpkins 2 kids; 4 angel babies; San Francisco, California 10716 posts
10th Aug '08
Quoting sick_girl:
Steph & "The Boys" + Sis 51 kids; Lacey, Washington 8542 posts
10th Aug '08
Quoting sick_girl:
10th Aug '08
Quoting sick_girl:
The Blue Heart 3 kids; Australia 9165 posts
10th Aug '08
mama3trish 3 kids; Ontario 9524 posts
10th Aug '08

Wow sounds like we were living the same nightmare, although my daughter just ended up having really bad acid reflux.Has anyone offered that suggestion to you?I'm not a truster of chiropractors and had many suggest the same when my daughter was an infant, but I finally got a diagnosis with reflux and started her on Zantac and 3 days later she was completely different-still a little more demanding but cried 1/8 of the time.Mabey just ask about the reflux, it can be silent, meaning not a lot of spit-up but nonetheless still as painful.After that I say go for the chiropractor, quality of life is important, and I felt robbed of my daughters first few months because no doctor wouls take us seriously neither.Good luck!

^_^ TTA since Dec 2008; 65 kids; California 229 posts
10th Aug '08

I read the web link... and am freaked out now that my daughter has it. :( is there anyway to know for sure? But she doesn't cry all the time ... but all the other symptoms seem to match. I'm such a worry wart.

jnCjandkjncfakldvn zm, kj Australia 19146 posts
10th Aug '08
Quoting marine baby 08:
sick_girl Due February 24; 17 kids; Essen, Germany 3089 posts
10th Aug '08

thank you everyone for the suggestions. I have looked into reflux. I thought at first it was that as well but her pedi says it isn't that for sure. She said she is gaining to much weight for it to be that. Like i said i took her to the doctor twice last week. Monday i went in asking about this reflux and thursday i went in for her 4-6 week check up and she finally got to see how she is. i think no one beleived me before this becuase when ever we took her to the dr or the ER she would fall asleep in the carseat and be an angel when anyone else saw her.



I have never heard of his before either but it seams like it could be the answer. Her pedi said it is a new discovory and that a lot of doctors and insurance companies don't even recognize it at a real condition. She said we might have to pay for the treatment ourselfs. I don't care about that though, i don't care what it coasts as long as it helps my baby.

sick_girl Due February 24; 17 kids; Essen, Germany 3089 posts
10th Aug '08
Quoting mama3trish:
mama3trish 3 kids; Ontario 9524 posts
10th Aug '08
Quoting sick_girl:
sick_girl Due February 24; 17 kids; Essen, Germany 3089 posts
10th Aug '08
Quoting mama3trish:
Steph & "The Boys" + Sis 51 kids; Lacey, Washington 8542 posts
10th Aug '08

I would have them at least palpate her like they say they do and make sure because if it is the KiSS syndrome they need to examine her and if it goes untreated it can have serious developmental issues. It doesn't hurt to get a second opinion but if she does have it, from what I've read its really easy to treat with one or two adjustments and it shows great improvement. And from what I've been told by my friend your baby has a mild case of it if she does. It can be really bad with scoliosis of the face and back, and difficulty keeping their head up and leaning to one side cuz the spine is curved to one side and stuff like that.

sick_girl Due February 24; 17 kids; Essen, Germany 3089 posts
10th Aug '08
Quoting Steph - Secondbabybump:
^_^ TTA since Dec 2008; 65 kids; California 229 posts
10th Aug '08

My hubby says our baby doesn't have it. But he's not around the baby as much as I am. I'll just ask about it at the next appt. But knowing the naval hospital they won't know crap. grrr. Hopefully changing insurance soon so we can decided where and who sees our girl. Maybe then I'll find a doctor who knows something. Maybe I just have first time mom jitters about everything. I've raised my younger siblings from newborns but for some reason having it be "mine" I'm so much more worried then I ever was with them.