thats terrible but fantastic at the same time, at least you know now and can help her. Congrats for fighting on to find the answers....Hope her recovery is short and sweet....
its good that you finally got a diagnosis. Now she can be treated and be a normal happy little baby girl. I took my son to the chiropractor yesterday, and last night he actually slept! He has been really settled too, which is unusual but great. His neck was out too, and needed some adjusting. He will prob need 2-3 sessions but it has already eased his reflux, he has hardly spit up at all since seeing the chiro.
All the best to u and ur lil girl :D
well it is wednesday night here and we took her monday afternoon. i haven't sean any real improvment. she still keeps her head to the right most of the time and crys all the time. The midwife was here yesterday and got to see/smell one of her poops and she said we should take her to the doctor again. She said she never saw a baby in her age smell that bad. She thinks she may also have a milk allergy....
i don't think we will ever find out what it really is. I will take her back to the doctor tomorrow. i feel so hopeless. :cry::cry:
we really have to work soemthing out. she is so stressed she has started pulling her hair. i have to keep a sock on her hand....:cry::cry::cry::cry:
Dear "sick-girl" KISS syndrome is a name for a collection on symptoms that arise due to a suboccipital strain (this is part of the skull at the back of the head). In the infant the child's skull is malleable - otherwise wouldn't be able to fit through on birth. If this area becomes strained then a collection of funcitonal problems are reported to occur. It sounds if your daughter may fit many of thouse symptoms. Treatment often involves gentle corrective maniupulation of the upper cervical spine (top of the neck) and or the cranial bones themselves. As well and the consultant you might want to contact a chiropractor or osteopath in your area that specialises in children and the cranium as research supports that children respond very well to this non invasive treatment
Dear parent! I work as an Pediatric Osteopath in New Zealand and I treat babies with KISS-syndrome on a daily basis. Is very common and both Cranial / or pediatric Osteopaths and pediatric chiropractors are very good at dealing with this and we hav 100% positive results. Anne
My new grandson in Norway is thought to have KISS syndrome, but the special baby chiropractor there doesn't call it a syndrome because, she said, "then peope think it is an illness." She has used very gentle manipulation of his head and shouders. Her explanation is that he wwas delivered by C-section and didn't get a full-body massage through the birth canal. He was also a very big baby (10 lbs) and so was pretty squished in the womb. He has been fussy, but is a good eater and seems to be more relaxed and calm after a massage. From what I have read (which I did IMMEDIATELY when my son told me the "diagnosis) is that it is not serious for the child. But it is uncomfortable. Find a chiroprator who deals with infants. They can be a God-send! And remember, crying is merely oisy, not fatal. Good luck!
My baby Lachlan has KISS syndrome from birth he always cried in his sleep when i bathed him he's back always arched to one side he was a very happy baby during the day but never slept for more than 10 mins at a time he had really bad reflux to the piont i felt i had to stop breast feeding to use reflux formnula he cried alot for what seamed like no resason but the doctors just said its was reflux or gas! so i googled babies with sleeping problems and found KISS syndrome i then took him to a chiropractor and he said it was KISS so he started treatment after 8 times of seeing the chiro not much had changed or Lachy would get better but only for a couple days then be back to normal crying all the time! i heard of other babies having the same kind of thing but only needed to see a chiro 4x max so i took Lachy to a different chiro for a second opinion the new chiro said his neck was out his hgip was out and 3 bones in his back were out! he fixed him over 3 sessions now at 6 months old Lachy only wakes once a night for food :) if your baby does have KISS it should only take about 3x to fix if you see a good chiropracotor if its taking longer i suggest trying a different chiro not a naturopath as they only do slow natural treatment it looked like he was only giving Lachy a massage, my poor little boy was in pain for months because of a naturopath only doin minimum! but y new chiro actually snapped his neck back into place over 3 sessions it scary to watch but lachy never cried and he is the best baby now :) my new chrio also said you shouldnt call it a syndrome because, "then peope think it is an illness." both my chiropractor where baby ones i found this site the most explaining