Reply
~*`lulu`*~ TTC since Jun 2011; 16 kids; Ontario 4782 posts
23rd Mar '09

I couldnt imagine facing this ! I will be keeping you in my prayers!

Carter's Mama 1 child; Garland, Texas 544 posts
23rd Mar '09

From the Trisomy 18 official page:
"Some children will be able to be discharged from the hospital with home nursing support for their families. And although less than 10 percent survive to their first birthdays, some children with Trisomy 18 can enjoy many years of life with their families, reaching milestones and being involved with their community. A small number of adults (usually girls) with Trisomy 18 have and are living into their twenties and thirties, although with significant developmental delays that do not allow them to live independantly without assisted caregiving."



I would by no means terminate a child that has a potential to live into their 20's or 30's...

HappinessInMisery 3 kids; Ohio 30396 posts
23rd Mar '09
Quoting Carter's Mama [3rd tri!]:
tifleah 3 kids; Arizona 422 posts
23rd Mar '09
Quoting Carter's Mama [3rd tri!]:
Lilia's Mama (TTC#2) TTC since Aug 2013; 1 child; Florida 3592 posts
23rd Mar '09

When are doctors able to tell if this is a risk for your baby? Is this the same test as the downs blood work? Or is this another test done?

HappinessInMisery 3 kids; Ohio 30396 posts
23rd Mar '09
Quoting *Lilia's Mommy*:
Lilia's Mama (TTC#2) TTC since Aug 2013; 1 child; Florida 3592 posts
23rd Mar '09
Quoting Kenz&LilysMommy:
Carter's Mama 1 child; Garland, Texas 544 posts
24th Mar '09
Quoting tifleah:
tifleah 3 kids; Arizona 422 posts
24th Mar '09
Quoting Carter's Mama [3rd tri!]:
HappinessInMisery 3 kids; Ohio 30396 posts
24th Mar '09
Quoting Carter's Mama [3rd tri!]:
Susan Budd 5 kids; Simpsonville, South Carolina 3 posts
3rd Sep '12

I have a 3 year old daughter with full trisomy 18. Our life would not be complete without her. The statistics you were given are somewhat inaccurate. And, while the children are mostly very intellectually disabled, trisomy families feel incredibly blessed. Please do not consider terminating, but look a little farther at the possibilities and the happiness these children can bring to us. You can check out Rebekah at my blog http://www.buddzoo.com. We have a great support group on facebook full of living trisomy kids and full of families that have lost a trisomy child but have no regrets for carrying to term. Please check us out! https://www.facebook.com/groups/T18Mommies/



Also check out our organization: http://www.hopefortrisomy.org/