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Listerfiend! [OG 2.0] 2 kids; New York 39725 posts
24th May '09

I didnt forget about this to update it.



Im on meds for all these cysts and it's making me all effing weird. Lol

Listerfiend! [OG 2.0] 2 kids; New York 39725 posts
26th May '09

The OP has been updated, please tell me if you have been missed!

Mummy X2 34 kids; United Kingdom 143 posts
28th May '09

My daughter has tuberous sclerosis

capricorn007 34 kids; Phoenix, Arizona 725 posts
28th May '09

I am Jennifer my son has dysphagia

Listerfiend! [OG 2.0] 2 kids; New York 39725 posts
28th May '09

What are your names?

capricorn007 34 kids; Phoenix, Arizona 725 posts
28th May '09

Jennifer son Patrick

Mummy X2 34 kids; United Kingdom 143 posts
28th May '09

My name is Zoeyie-alice my daughter nevaeh-tracey

Listerfiend! [OG 2.0] 2 kids; New York 39725 posts
28th May '09

I'll be updating it tonight, and adding you two to the list!

Inconvenient Truth 2 kids; Ontario 184 posts
28th May '09

Hi. I posted on the GDS thread too. My name is Laurie and my son Davin has Williams Syndrome (WS); also referred to as Williams-Beuren Syndrome (a rare non-hereditary genetic syndrome). Can you please add me as well?! Thanks in advance.

*angel eyes*CDL*TBT* 6 kids; Fayetteville, 1219 posts
29th May '09

my 3 yr old has HLHS...heart defect..... if he counts... Jeremiah
and my 6 month old Lawson has a breathing problem dysphagia and trocolitis i believe thats how you spell it..his neck and head is messed up and its been that way since he was born :(

Bryson~N~Jaxson's Mommy 2 kids; Tennessee 262 posts
31st May '09

Hi my name is Latisha and my son Bryson has Cerebral Dysgenesis here is a link to tell more about it. I would love to be on your list to hopefully find someone else out there whose child may have the same thing so far we have only meet one other person with the same condition. http://www.ninds.nih.gov/disorders/neuronal_migration/neuronal_migration.htm

Faylynn&JesselynsMomma! Due April 16 (girl); 17 kids; Pasadena, Texas 4417 posts
31st May '09

i'm Lacey, my almost 13 month old daughter [ Faylynn ] has a bilateral cleft lip/palate.
can i be added on?

Listerfiend! [OG 2.0] 2 kids; New York 39725 posts
31st May '09

Yes. I'm gonig to be updating the OP when I Can sit here fo rlonger than 10 mins w.o hurting. :cry::cry:

Faylynn&JesselynsMomma! Due April 16 (girl); 17 kids; Pasadena, Texas 4417 posts
31st May '09
Quoting GDSTGTBBMACDCSTPNIN:
tasha7205 18 kids; Michigan 151 posts
1st Jun '09

my name is tasha and my son skylair has autism A.D.H.D and some anger problems and Asthma he also had A,S,D(a hole in his heart that they had to fix )