I didnt forget about this to update it.
Im on meds for all these cysts and it's making me all effing weird. Lol
The OP has been updated, please tell me if you have been missed!
My daughter has tuberous sclerosis
I am Jennifer my son has dysphagia
Jennifer son Patrick
My name is Zoeyie-alice my daughter nevaeh-tracey
I'll be updating it tonight, and adding you two to the list!
Hi. I posted on the GDS thread too. My name is Laurie and my son Davin has Williams Syndrome (WS); also referred to as Williams-Beuren Syndrome (a rare non-hereditary genetic syndrome). Can you please add me as well?! Thanks in advance.
my 3 yr old has HLHS...heart defect..... if he counts... Jeremiah
and my 6 month old Lawson has a breathing problem dysphagia and trocolitis i believe thats how you spell it..his neck and head is messed up and its been that way since he was born :(
Hi my name is Latisha and my son Bryson has Cerebral Dysgenesis here is a link to tell more about it. I would love to be on your list to hopefully find someone else out there whose child may have the same thing so far we have only meet one other person with the same condition. http://www.ninds.nih.gov/disorders/neuronal_migration/neuronal_migration.htm
i'm Lacey, my almost 13 month old daughter [ Faylynn ] has a bilateral cleft lip/palate.
can i be added on?
Yes. I'm gonig to be updating the OP when I Can sit here fo rlonger than 10 mins w.o hurting. :cry::cry: