Phenylketonuria (PKU) is a rare genetic condition that babies are born with and there is no cure.
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48 hours after birth, using a heel-prick, a small amount of blood is drawn to screen for PKU.
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Babies with PKU are unable to break down phenylalanine, which can lead to brain damage.
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Twin babies of UK mother were born with the disease and she cannot afford treatment.
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Leanne Barnett has been quoted up to £75,000 per twin for a yearly Kuvan prescription.
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Her petition for Kuvan to be more affordable and available through the NHS has over 16,500 signatures.
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The mother also quit her job to monitor the lifestyle and strict diet of her twin girls.
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