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  • Phenylketonuria (PKU) is a rare genetic condition that babies are born with and there is no cure. 1 / 8

  • 48 hours after birth, using a heel-prick, a small amount of blood is drawn to screen for PKU. 2 / 8

  • Babies with PKU are unable to break down phenylalanine, which can lead to brain damage. 3 / 8

  • Twin babies of UK mother were born with the disease and she cannot afford treatment. 4 / 8

  • Leanne Barnett has been quoted up to £75,000 per twin for a yearly Kuvan prescription. 5 / 8

  • Her petition for Kuvan to be more affordable and available through the NHS has over 16,500 signatures. 6 / 8

  • The mother also quit her job to monitor the lifestyle and strict diet of her twin girls. 7 / 8

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