Ohio Parents Raising Money For Baby Who Is Fighting For His Life As He Battles Two Rare Diseases

KC and Angel Ahlers are raising money for their baby who was born with two rare, life-threatening conditions. Randy James Ahlers is three months old, and he has both Agenesis of the Corpus Callosum and Mosaic Trisomy 9 Syndrome. His parents are doing everything they can to raise money for all his treatments.

Agenesis of Corpus Callosum is a rare disorder that affects the brain. The brains of babies who have it lack the part that connects the two cerebral hemispheres. One of the first symptoms of this disease is a seizure, and they become more frequent. Other symptoms include feeding problems and delays in holding their heads erect. According to Randy James’ doctors, his Agenesis of Corpus Callosum was triggered by his other disorder.

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Mosaic Trisomy 9 is a rare disorder characterized by having three of the 9th chromosome. Normally, there will only be a pair of the 9th chromosome, but in this case, there’s an extra one. It results in growth deficiency, malformations of the heart, and deformities of the skull. A common effect of the condition is development of intellectual disabilities.

The Ahlers are rallying all the support they can get. Since their baby boy loves comic books, Disney, and superheroes, family members dress up like a character, and they go around holding a bucket with his photo on it. The big orange bucket says “RJ Fundraiser” and “it takes a village” to clarify the family’s cause. From 9 a.m. to 5 p.m., they wait at the intersection of Laskey, Tremainsville and Douglas, Toledo hoping to fill the bucket.

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The couple was quite shocked with the diagnosis because the pregnancy was normal. No matter what conditions RJ has, he remains perfect in his parents’ eyes. It’s going to be a challenge, but they’re ready to raise him to the best of their abilities. With that, they are determined to make sure he gets a fighting chance at life, so they are doing their best to raise funds. If it takes going around the whole city in a Batman costume carrying a bright orange bucket, then they’ll do it in a heartbeat.

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